Re: What to do with my endo?
From: anonymous@obgyn.net
Wed Nov 29 15:35:46 2006
Dear Marita:
Dr. Redwine is a great choice. Have you already had a consult with Dr.
Mark Surrey in Beverly Hills? Who did this last lap?
http://www.womenssurgerygroup.com/physicians/
home page http://www.womenssurgerygroup.com
http://www.endometriosistreatment.org
At Wed, 29 Nov 2006, Marita wrote:
>
>Thank you ALL for your great advice. I am just really down/sad right
>now. I was really hoping that after this surgery the dr. would say
>that something had worked, that maybe it wasnt gone, but at least the
>same...not worse. But I am trying very hard to take all of your advice.
>I looked at Dr. Redwine's page and I am really considering sending him
>my history (i think its $125). I live in Los Angeles so Oregon wouldnt
>be that far to go. My dr. only burned off the endo I think (is that
>electrocauterization?)
>
>At Wed, 29 Nov 2006, anonymous wrote:
>>
>>I absolutely agree with Bab - go to an endo specialist!
>>
>>Also to Marita - you are only supposed to take a maximum of two 6-month
>>courses of Lupron in your lifetime, and you've already had 7 months of
>>it that didn't help. Please don't let the doctor push you into doing
>>Lupron again! Did your doctor remove the endo at your last lap? Did he
>>do excision, or did he burn it off? The best treatment available right
>>now is thorough excision, done by a specialist.
>>
>>You may have to fight to get the treatment you need, but please don't
>>give up!
>>
>>At Tue, 28 Nov 2006, anonymous@obgyn.net wrote:
>>>
>>>Hi:
>>>The best thing you two can do is to see an endo specialist. Women of my
>>>age were also told to take pills, etc. -- not good, not the solution.
>>>Some of the other women here on the forum and I have posted various
>>>websites which contain the names of endoscopic laparoscopic specialists
>>>who can excise the endo. The following websites can help educate you
>>>about your condition. The surgeons of the http://www.womenssurgerygroup.com
>>>and Dr. Redwine of http://www.endometriosistreatment.org are highly skilled at
>>>excising endo -- they are the cream of the crop. Check out the website,
>>>see which specialist is closest to you, give them a call.
>>>
>>>http://www.womenssurgerygroup.com
>>>
>>>http://www.endometriosistreatment.org
>>>
>>>http://www.geocities.com/endovictims/endodocs.html
>>>
>>>At Tue, 28 Nov 2006, Courtney wrote:
>>>>
>>>>Hi Marita.
>>>>
>>>>I am also 21 and a student dealing with Endo. I know exactly how you
>>>>feel. my lap was in june and they gave me lupron. it was a 3 month
>>>>shot that didn't relieve my pain for longer than 3 weeks. I never got
>>>>the second shot and i'm still getting hot flashes and night sweats. I'm
>>>>also on the continueous birth controll. I wake up in pain just about
>>>>every day. I'm constantly in pain and i hate it. No one understands me
>>>>and how i feel. i was working 2 jobs as well as school full time. now
>>>>i'm only working 1 job an school. but some days i feel like i can't do
>>>>it. I have emotional break downs. Nothing has help. My doctor wants
>>>>me to see a G I specialist to see if there is something else wrong. Just
>>>>know that you are not alone. If you want to talk my e mail is
>>>>Camarochic1524@comcast.net
>>>>
>>>>Hope you have a good night
>>>>
>>>>--
>>>>Courtney
>>>>
>>>>At Tue, 28 Nov 2006, Marita wrote:
>>>>>
>>>>>Hello
>>>>>My name is Marita and I am a 21 yr old student with endo. I am
>>>>>recovering right now from my second laparoscopic surgery/dc. After my
>>>>>1st surgery last year, my dr. put me on depo lupron. I did it for 7
>>>>>months (and it was horrible, I couldnt go to school, sleep, I couldnt
>>>>>handle the hot flashes or emotional instability)... After that I tried
>>>>>the continuos birth control, but because of my constant pain he
>>>>>suggested a 2nd surgery. Well I had that on Friday Nov 24th. and the
>>>>>Dr. told me that the endo was worse this time, he wants me to do the
>>>>>lupron all over again. I dont want to, it was hell, and it didnt even
>>>>>work for me. Any ideas on what to do? I'm ready to give up :(
>>>>
>>>>--
>>>>Alone in DE
>>>>
>>>>Courtney
>>>>
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