|
Re: What to do with my endo?
From: Marita (anonymous@obgyn.net)
Wed Nov 29 14:03:23 2006
Thank you ALL for your great advice. I am just really down/sad right
now. I was really hoping that after this surgery the dr. would say
that something had worked, that maybe it wasnt gone, but at least the
same...not worse. But I am trying very hard to take all of your advice.
I looked at Dr. Redwine's page and I am really considering sending him
my history (i think its $125). I live in Los Angeles so Oregon wouldnt
be that far to go. My dr. only burned off the endo I think (is that
electrocauterization?)
At Wed, 29 Nov 2006, anonymous wrote:
>
>I absolutely agree with Bab - go to an endo specialist!
>
>Also to Marita - you are only supposed to take a maximum of two 6-month
>courses of Lupron in your lifetime, and you've already had 7 months of
>it that didn't help. Please don't let the doctor push you into doing
>Lupron again! Did your doctor remove the endo at your last lap? Did he
>do excision, or did he burn it off? The best treatment available right
>now is thorough excision, done by a specialist.
>
>You may have to fight to get the treatment you need, but please don't
>give up!
>
>At Tue, 28 Nov 2006, anonymous@obgyn.net wrote:
>>
>>Hi:
>>The best thing you two can do is to see an endo specialist. Women of my
>>age were also told to take pills, etc. -- not good, not the solution.
>>Some of the other women here on the forum and I have posted various
>>websites which contain the names of endoscopic laparoscopic specialists
>>who can excise the endo. The following websites can help educate you
>>about your condition. The surgeons of the http://www.womenssurgerygroup.com
>>and Dr. Redwine of http://www.endometriosistreatment.org are highly skilled at
>>excising endo -- they are the cream of the crop. Check out the website,
>>see which specialist is closest to you, give them a call.
>>
>>http://www.womenssurgerygroup.com
>>
>>http://www.endometriosistreatment.org
>>
>>http://www.geocities.com/endovictims/endodocs.html
>>
>>At Tue, 28 Nov 2006, Courtney wrote:
>>>
>>>Hi Marita.
>>>
>>>I am also 21 and a student dealing with Endo. I know exactly how you
>>>feel. my lap was in june and they gave me lupron. it was a 3 month
>>>shot that didn't relieve my pain for longer than 3 weeks. I never got
>>>the second shot and i'm still getting hot flashes and night sweats. I'm
>>>also on the continueous birth controll. I wake up in pain just about
>>>every day. I'm constantly in pain and i hate it. No one understands me
>>>and how i feel. i was working 2 jobs as well as school full time. now
>>>i'm only working 1 job an school. but some days i feel like i can't do
>>>it. I have emotional break downs. Nothing has help. My doctor wants
>>>me to see a G I specialist to see if there is something else wrong. Just
>>>know that you are not alone. If you want to talk my e mail is
>>>Camarochic1524@comcast.net
>>>
>>>Hope you have a good night
>>>
>>>--
>>>Courtney
>>>
>>>At Tue, 28 Nov 2006, Marita wrote:
>>>>
>>>>Hello
>>>>My name is Marita and I am a 21 yr old student with endo. I am
>>>>recovering right now from my second laparoscopic surgery/dc. After my
>>>>1st surgery last year, my dr. put me on depo lupron. I did it for 7
>>>>months (and it was horrible, I couldnt go to school, sleep, I couldnt
>>>>handle the hot flashes or emotional instability)... After that I tried
>>>>the continuos birth control, but because of my constant pain he
>>>>suggested a 2nd surgery. Well I had that on Friday Nov 24th. and the
>>>>Dr. told me that the endo was worse this time, he wants me to do the
>>>>lupron all over again. I dont want to, it was hell, and it didnt even
>>>>work for me. Any ideas on what to do? I'm ready to give up :(
>>>
>>>--
>>>Alone in DE
>>>
>>>Courtney
>>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)