Re: What to do with my endo?
From: anonymous (anonymous@obgyn.net)
Wed Nov 29 08:17:25 2006
I absolutely agree with Bab - go to an endo specialist!
Also to Marita - you are only supposed to take a maximum of two 6-month
courses of Lupron in your lifetime, and you've already had 7 months of
it that didn't help. Please don't let the doctor push you into doing
Lupron again! Did your doctor remove the endo at your last lap? Did he
do excision, or did he burn it off? The best treatment available right
now is thorough excision, done by a specialist.
You may have to fight to get the treatment you need, but please don't
give up!
At Tue, 28 Nov 2006, anonymous@obgyn.net wrote:
>
>Hi:
>The best thing you two can do is to see an endo specialist. Women of my
>age were also told to take pills, etc. -- not good, not the solution.
>Some of the other women here on the forum and I have posted various
>websites which contain the names of endoscopic laparoscopic specialists
>who can excise the endo. The following websites can help educate you
>about your condition. The surgeons of the http://www.womenssurgerygroup.com
>and Dr. Redwine of http://www.endometriosistreatment.org are highly skilled at
>excising endo -- they are the cream of the crop. Check out the website,
>see which specialist is closest to you, give them a call.
>
>http://www.womenssurgerygroup.com
>
>http://www.endometriosistreatment.org
>
>http://www.geocities.com/endovictims/endodocs.html
>
>At Tue, 28 Nov 2006, Courtney wrote:
>>
>>Hi Marita.
>>
>>I am also 21 and a student dealing with Endo. I know exactly how you
>>feel. my lap was in june and they gave me lupron. it was a 3 month
>>shot that didn't relieve my pain for longer than 3 weeks. I never got
>>the second shot and i'm still getting hot flashes and night sweats. I'm
>>also on the continueous birth controll. I wake up in pain just about
>>every day. I'm constantly in pain and i hate it. No one understands me
>>and how i feel. i was working 2 jobs as well as school full time. now
>>i'm only working 1 job an school. but some days i feel like i can't do
>>it. I have emotional break downs. Nothing has help. My doctor wants
>>me to see a G I specialist to see if there is something else wrong. Just
>>know that you are not alone. If you want to talk my e mail is
>>Camarochic1524@comcast.net
>>
>>Hope you have a good night
>>
>>--
>>Courtney
>>
>>At Tue, 28 Nov 2006, Marita wrote:
>>>
>>>Hello
>>>My name is Marita and I am a 21 yr old student with endo. I am
>>>recovering right now from my second laparoscopic surgery/dc. After my
>>>1st surgery last year, my dr. put me on depo lupron. I did it for 7
>>>months (and it was horrible, I couldnt go to school, sleep, I couldnt
>>>handle the hot flashes or emotional instability)... After that I tried
>>>the continuos birth control, but because of my constant pain he
>>>suggested a 2nd surgery. Well I had that on Friday Nov 24th. and the
>>>Dr. told me that the endo was worse this time, he wants me to do the
>>>lupron all over again. I dont want to, it was hell, and it didnt even
>>>work for me. Any ideas on what to do? I'm ready to give up :(
>>
>>--
>>Alone in DE
>>
>>Courtney
>>
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