Re: Lupron w/o confirmed diagnosis
From: Elisa (anonymous@obgyn.net)
Tue Nov 28 18:32:31 2006
Dear Annon or Anyone Who Can Answer This~
I just saw this posts and I wondered if there was a link with this
specific information on Lupron being used as Chemotherapy? While I took
Lupron and Synarel because Lupron wasn't right for me, this seems to be
a BIG fact the Dr.'s missed if we are just taking "chemotherapy" drugs
without being properly informed.
If there is some literature or sites or links to back up this statement
that came on this posts I would really appreciate it. I knew they used
it with prostate patients but not as the chemotherapy portion of it.
Thanks so much on helping me with this topic. If that is the case why
aren't they telling all women when they give this to them that this is a
"chemotherapy"
drug.
Have a good night everyone. I hope everyone is doing OK before the
holidays again.
Thinking of you...
--
Elisa
At Tue, 28 Nov 2006, anonymous wrote:
>
>In about 50% of women Lupron does nothing to relieve their pain, and
>even if it works you can only take two 6-month courses of the drug in
>your lifetime. It will put you into chemical menopause, and it can
>cause depression, bone loss, joint pain/fibromyalgia, memory problems,
>etc. AND when you are done you still won't have a diagnosis, AND if the
>pain comes back you'll be right where you are - but maybe with a few
>lasting side effects, and you won't be able to take any more Lupron.
>
>Lupron was first used as a chemotherapy drug for men with prostate
>cancer. It is chemotherapy. Did your doctor tell you that? It might
>not even stop your periods!
>
>I hope you will do some research on Lupron, and consider getting a new
>doctor. Your symptoms sound a bit like endo of the diaphragm, so you
>may want to research that, too.
>
>Good luck!
>
>At Mon, 27 Nov 2006, Megan wrote:
>>
>>In August, I started having pain associated with drinking alcohol. The
>>pain was in my kidney area, and sparked every time I had a drink of
>>alcohol. The pain then progressed to add my right shoulder, and
>>radiated down to my elbow and I get numbness in my pinky/ring fingers. I
>>went to the doctor, and ended up going through various tests and the
>>docs decided it was my gallbladder. So, I had my gallbladder removed,
>>via lap procedure. W/in 2 days, I developed a pulmonary embolism, and
>>then went on blood thinners. W/in 5 days, they found that I was
>>bleeding internally, and I ended up having abdominal surgery to fix that
>>problem. 17 days later, I was released from the hospital, with one HUGE
>>problem. The pain that I started with, is still there!! At first my
>>docs were content to just "wait it out", put me on percocet, and
>>oxycontin to manage the pain for a month, and then they wanted me to
>>wean off. Well, it is now the end of November, and I am still on the
>>Oxycontin, and the pain is nowhere near improving.
>>
>>SO.... why I am I posting on here! I am typically "normal" as far as my
>>periods go. However, I have had 3 periods in the past 7 weeks. My
>>pain, typically, is worse 2-3 days out of the week, however, during the
>>day or two before my period begins and while it is going on, I have
>>around 5-6 days of tremendous pain. So, I called my ob-gyn to ask about
>>all of this, and he is now suggesting treating me with Lupron. I had a
>>diagnostic lap done in march of 2005, just found that there was "scar
>>tissue" on one of my tubes, but no confirmed "endometriosis". I also
>>had my tubes tied in Jan 2006, the day after my 3rd son was born.
>>
>>So, because of all of these recent complications with operations, he is
>>trying to stear clear of doing another lap. My concern, is Lupron going
>>to cause all sorts of emotional, and physical trauma, for a condition,
>>that we don't even know if I have??!?!?!
>>
>>I am depressed about even the thought of having to go into menopause for
>>even a short time. I have been dealing with this kidney area/shoulder
>>pain since August now. I have gone through 3 operations, and seen
>>endless numbers of doctors trying to figure out what is going on.
>>
>>I have done EVERYTHING that has been suggested, with no success, I just
>>don't know if I can handle, what I perceive is, a tremendous strain on
>>one's body both emotionally and physically.
>>
>>I actually go and see my ob-gyn on Thursday to discuss this, so I have
>>been trying to become as informed as possible. Any thoughts or
>>suggestions that might help make this decision easier for me would be
>>great!!
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)