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Re: advise on a second Laparoscopy
From: Tara (anonymous@obgyn.net)
Mon Nov 27 20:34:21 2006
Hey thanks so much for the confirmation, i came accross that page and
send him an e-mail earlier today. It's great to hear that someone has
heard of him. How is it that you did? I live in NY but PA is definitely
a "do-able" trip to getting this taken care of :-)Have you met him? used
him???
At Mon, 27 Nov 2006, anonymous@obgyn.net wrote:
>
>Dear Tara:
>Hi. I've been reading your forum posts and just noticed that you
>mentioned you live near PA -- you mentioned Dr. Reich. If endo is your
>problem, smile Tara! Tara, Dr. Reich is world renowned -- he truly is
>the "BEST" -- read his resume; search his name here on the endo forum;
>google his name; read about him at http://www.adlap.com/reich.html (
>http://www.adlap.com ) or http://www.womenssurgerygroup.com and to top it off, he is
>the nicest guy. You literally could not be in better hands -- he is
>"the Master"! Just read about him and you'll see.
>He even provides his email address if you want to email him! Read this
>page (his email is listed on this page) http://www.adlap.com/reich.html
>
>At Mon, 27 Nov 2006, anonymous@obgyn.net wrote:
>>
>>Tara, definitely something you need to discuss in detail with the
>>specialist. If I were you, I would start journalling your symptoms and
>>include types of pain/discomfort, where you are in relation to the
>>cycle. One of the unfortunate realities of any surgery, be it
>>laparoscopy or laparotomy is the formation of adhesions--like in my
>>case. This is the body's natural way of healing and for many people
>>that don't cause an issue. For others, it can be a real problem. In my
>>case, endo was found in some adhesion tissues. Some of what you're
>>experiencing could be attributed to adhesions, or it could more
>>endometriosis has flared in those areas. This is your health, your
>>life. I have felt so fortunate not to suffer as badly as some women
>>with this disease. I hope that the courses I have taken are going to
>>make it better, or at least not make it any worse. Endo can affect both
>>the bladder and the bowel and this is why it's so important to find an
>>absolute expert. You need someone who has a great deal of experience in
>>diagnosing and excising. Have a look at the CEC website I mentioned
>>previously. If I were back in the U.S., I would do whatever it took to
>>see either them or Redwine. There are never any guarantees, but you can
>>give yourself the best possible shot at managing/defeating this disease.
>>Feel free to email me privately if you want to chat. Take care.
>>
>>At Mon, 27 Nov 2006, Tara wrote:
>>>
>>>That was another question that I meant to ask... My doctor said that
>>>when she did the lap she did not notice anything that seemd out of the
>>>ordinary as far as endo to bowels or anything like that "sticking"
>>>together. But recently I have been having horrible bladder spasms,,
>>>constant feeling for the need to urinate... as well as about 80 % of
>>>the month terrible bowel movements. I also feel sometimes as if
>>>something is being torn (ovary area) if I move to quickly... like there
>>>is a string from each of my ovaries to my belly button and it's being
>>>stretched, sometimes a feeling as though it's snapped. Do you know what
>>>the possibility is that I could have Endo in/ on my bladder / bowels?
>>>
>>>At Mon, 27 Nov 2006, anonymous@obgyn.net wrote:
>>>>
>>>>Well, recurrence is always a possibility. Don't know if some was missed
>>>>last time or it just came back. At the 2nd lap, 2 weeks ago they
>>>>removed an ovarian cyst that had reformed (as big as the one removed a
>>>>year ago) as well as anything that looked like possible endo. My left
>>>>ovary was adhered to the bowel with a bit of endo (something that
>>>>happened post-first lap). They cut away part of the ovary to free the
>>>>bowel, but left it attached as the surgeon was concerned the endo
>>>>adhering it could have penetrated the bowel. We're crossing fingers
>>>>that it just remains there and becomes part of the scar tissue without
>>>>causing future problems. The tissue that took out was a mixture of endo
>>>>and scar tissue. He thinks he's pretty hot at what he does ;-) so I'm
>>>>hoping chance of recurrence is less this time. Only time will tell with
>>>>this disease.
>>>>
>>>>At Mon, 27 Nov 2006, Tara wrote:
>>>>>
>>>>>Thanks! Actually I was just searching and Dr Redwine's name did come up
>>>>>quite a few times, as well as a doctor by the name of Reich, who is
>>>>>right near me in PA. I want to do more research but apparently he also
>>>>>does Excisions...
>>>>>
>>>>>Im sorry to hear you had a recurrence. Do they know why? What will you
>>>>>do now?
>>>>>
>>>>>At Mon, 27 Nov 2006, anonymous@obgyn.net wrote:
>>>>>>
>>>>>>Tara, you may want to check out the previous posts regarding the Centre
>>>>>>for Endo Care in Atlanta (Dr Albee and Dr Sinervo), as well as those
>>>>>>about Dr. Redwine in Bend, Oregon. I'm an American living in Australia
>>>>>>and have just gone through my 2nd lap for excision. My first surgeon
>>>>>>did the lap to diagnois and excise at the same time. Unfortunately I
>>>>>>have had a recurrence (within the year). The new surgeon (only because
>>>>>>I moved States) even commented on Dr. Redwine as the foremost expert in
>>>>>>the field that boasts (and rightly so) a low recurrence rate within five
>>>>>>years. Do a search on his name and you'll see various references to
>>>>>>check out. It's unfortunate that you're having problems again, but not
>>>>>>surprising since you said your first dr. only removed a small amount.
>>>>>>Any amount left in is bound to cause problems again. Sounds like you're
>>>>>>on the right track though and definitely search out the best. The two
>>>>>>places mentioned above are also very much about trying to conserve
>>>>>>fertility.
>>>>>>Good luck to you!
>>>>>>
>>>>>>At Mon, 27 Nov 2006, Tara wrote:
>>>>>>>
>>>>>>>I definitely feel that it's time to start reconsidering having a second
>>>>>>>lap, I guess I'm just a little apprehensive. I really want to make sure
>>>>>>>that it's a doctor who is highly recommended..no matter how far I have
>>>>>>>to travel... We've been trying to get pregnant for almost a year and a
>>>>>>>half now with not even the slightest bit of hope. I'm just really
>>>>>>>getting to the point where I find myself unable to control the tears
>>>>>>>when people ask or talk about children. After getting married everyone
>>>>>>>starts in with the "when are you going to have children" and a lot of
>>>>>>>people especially at work dont know what I am going through so I cannot
>>>>>>>expect then to understand the sadness and pain I am going through...
>>>>>>>anyways I guess its time to seriously look into this huh?
>>>>>>>
>>>>>>>At Mon, 27 Nov 2006, Alyson wrote:
>>>>>>>>
>>>>>>>>Tara,
>>>>>>>>The endo could absolutely be ab issue in your trying to conceive. It
>>>>>>>>can create chemical imbalances, block ovaries and tubes, etc. I know it
>>>>>>>>is nerve wracking to consider a second lap when you worry that nothing
>>>>>>>>will be found. I had my second lap only a year following my first. My
>>>>>>>>original doctor insisted doing another lap was pointless because there
>>>>>>>>was no way endo could have grown back in such a short time and while I
>>>>>>>>was on meds. I sought a second opinion, he did the surgery and found
>>>>>>>>extensive endo- considerably more than my first doctor had found a year
>>>>>>>>earlier. It is important to remember that this disease tends to be
>>>>>>>>progressive. Each person progresses differently. Not everyone will
>>>>>>>>have the kind of rapid progression that I did and some women here have
>>>>>>>>had even more rapid progression of their disease. I talked to my doctor
>>>>>>>>about trying to coceive before he did my lap (the 2nd one). He said
>>>>>>>>that data shows that the best success for getting pregnant with endo is
>>>>>>>>within 4-6 months follwing a laproscopy for the removal of endo. Kind
>>>>>>>>of makes sense...get everything cleaned out and get busy before it has a
>>>>>>>>chance to really get going again.
>>>>>>>>Obviously having surgery is a personal decision. I am not trying to
>>>>>>>>talk you into it, but just ease some of those "what if" concerns. Also,
>>>>>>>>if you really trust this doctor, I would take her advice. Unfortunately
>>>>>>>>it can be rare to find a doctor dealing with this disease who is willing
>>>>>>>>to suggest that you seek someone with more knowledge of endometriosis. I
>>>>>>>>meantioned in my previous post (re: Endo and pregnancy) that a
>>>>>>>>reproductive endocrinologist might be helpful. That was at my docs
>>>>>>>>suggestion after she said that she was at the end of her expertise in
>>>>>>>>dealing with this disease.
>>>>>>>>Alyson
>>>>>>>>
>>>>>>>>At Mon, 27 Nov 2006, Tara wrote:
>>>>>>>>>
>>>>>>>>>I'm just looking for some advise...
>>>>>>>>>
>>>>>>>>>I was diagnosed with Endo three years ago with my current Doctor through
>>>>>>>>>a laparoscopy... at that time she was able to remove only a small
>>>>>>>>>amount of my endo. Directly after my surgery my DR suggested Lupron for
>>>>>>>>>6 months, which I did and though the pain subsided for 4 of those months
>>>>>>>>>they returned almost immediately after my injections stopped. For the
>>>>>>>>>past two years pain meds have done nothing to help... and my Dr is out
>>>>>>>>>of suggestions. She thinks I should see a new specialist. She informed
>>>>>>>>>me that the new doc will probably want to perform another Lap to make
>>>>>>>>>their own diagnosis. I see many of you have had NUMEROUS laps and was
>>>>>>>>>just wondering if they were only able to see and remove a tiny amount
>>>>>>>>>the first time, is there any real point in going through that again?
>>>>>>>>>Have any of you had better success on your second, third...etc? Or do
>>>>>>>>>you have any other suggestions as to another treatment I should talk to
>>>>>>>>>my Dr. about? A big factor right now is that my husband and I are
>>>>>>>>>trying to get pregnant... will that be an issue?
>>>>>>>>>
>>>>>>>>>Thanks for any suggestions, advise you can give.
>>>>
>>>>--
>>>>Bula
>>>>
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