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Re: Questions???
From: Annette (anonymous@obgyn.net)
Tue Nov 21 06:39:49 2006
I just responded to another person here in the forum about UTIs and
such, but you may want to ask your doctor about Interstitial Cystitis, a
chronic disease of the bladder in which the lining of the bladde is
damaged and causes pain. I was just diagnosed with it in August '06. I
was having chronic bladder spasms, pain when I would pee, frequent
urination, trying to go pee but nothing would come out, chronic pelvic
and back pain, etc. After some diagnostic questions and tests, I was
told I have IC. I have done some research and have found that people
who have IC often have other auto immune disorders such as endo (which I
have) and fibromyalgia (which I also have...a Trifecta of chronic Pain!
Weee!). Since then I've been put on some medication and I am on a very
restrictive diet which eliminates anything acidic, caffeinated, high in
potassium, alcoholic, etc. The diet is worth going on (that is if you
are diagnosed with IC, so please ask your dr!) because the medications
apparently take 3 to 6 months to kick in. It's just a thought, but if
it persists, I would ask your doc about this. Hope this helps. Feel
free to email me anytime.
At Sat, 18 Nov 2006, Pam wrote:
>
>Hi, everyone!!
>
>Thanks for all the responses I received I am glad that I at least know I
>wasn't crazy when I was telling people I hard unbearable pain. I am
>still wondering what all my gyn will have to say when I see him for the
>follow up visit.
>
>I am doing better today then I have been in the past. (since my
>surgery) I am still hurting a little bit but I think that is just
>because of the surgery.
>
>As for the cyst on my ovary, I am not sure about it. I was told I had
>some cyst when I had to make a visit to the ER one night. The report
>stated "scattered follicular cysts" on both ovaries. But when my gyn
>did the surgery he told my family that he only saw one and he drained
>it. I will check and get more information about that when I go on the
>24 to see him.
>
>I did have a question I am sure someone will be able to answer this. I
>am having problems peeing (sorry if didn't spell right) This just
>started right after I had my surgery. I feel like I have to pee and I
>feel like my bladder is full but when I go to the bathroom I have to sit
>there for 5 or so minutes before I can actually start to pee. This
>first happened when I got out of surgery. I just thought it was where
>the nurse was in there. (I have problems peeing when people are around
>especially if I don't know them) the problem has continued. I don't
>drink any caffiene drinks and I eat pretty healthy so I didn't think I
>could have a bladder infection. When I do eventually go, it doesn't
>hurt me or burn or anything. I am still having the lower back pain that
>I had before I went into surgery I am hoping that will go away. I do
>feel like I have to go a lot compared to before surgery, but it usually
>takes me a little while before I actually can. I don't know if this is
>something else or if it is associated with the Endo. I have noticed
>that I seem to be more thirsty since I had my surgery. I have to have
>something cold to drink all the time.
>
>If anyone else has had this problem or can give me some advice, I would
>be greatful.I hope all is well with everyone and hope to talk to all of
>you soon.
>
>Thanks
>Pam
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