ENDO Messages for November, 2006: Re: In so much pain I am at the end of my rope...any of you suffer from extreme back pain?

Re: In so much pain I am at the end of my rope...any of you suffer from extreme back pain?

From: Alyson (anonymous@obgyn.net)
Sat Nov 11 18:11:11 2006

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Kelli, Endometriosis often causes back pain when it is located in the cul de sac and the utero sacral ligament. The ligament contains nerves that are associated with the back, so the implants being located there often aggrivates those nerves. I have coped with the back pain with a heating pad and mild pain meds. You can get the therma care heat packs to put under your clothes when you can't stay plugged into the wall :-) There is a proceedure called a sacral nerve ablation where the doc will cut those nerves in the ligament (during a laproscopy) to disrupt the pain transmission. I had it done during my last lap and it helped significantly. You mentioned that you are seeing an acupunturist for your car accident pain. Have you specifically asked them to treat you for the endo related pain as well? I saw an acupuncturist for close to a year. There were things that they did for my endo pain that were slightly different from the back treatments. Also something cool I had done there was "cupping". It is when they heat the air inside little glass jars and put them on your back, creating suction. Then they move the jars around in a certain pattern to draw out impurities. It is essentially a deep massage. It felt wonderful, but leaves some pretty funny looking hickeys! If you are interested in exploring the diet further, there is a book by Dian Shepperson Mills called Endometriosis A Key to Healing and Fertility through Nutrition. It suggests staying away from alot of cheese and milk products, coffee, soy, and fatty meats (among other things). Hang in there, Alyson

At Sat, 11 Nov 2006, Kelli wrote: >
>Hi I am 34 and was diagnosed with endo after a lap in Feb 2006. To make
>a long story short I am seeing a specialist in Jan and it seems like so
>far away. I cancelled an apt for a hysterectomy because my boyfriend
>and I really want to have a child together. I am in so much pain I feel
>like I will go crazy...I started my period today and the pain is
>frequent anyways but so much worse during my period. I have tylenol 3's
>and I have percasets from my Dr to take when it gets really bad. I am
>so depressed and I feel like I am going crazy. I am so tired of being
>in pain. What I was wondering is if any of you have tried to control
>the endo symptoms through diet? If yes what are you supposed to eat or
>not eat. If I do not find some relief I am going to go nuts. I am
>having accupuncture done on my back and hip due to a car accident and I
>was really hoping that it would relieve some of the pain from the endo.
>The pain in my back is so severe at times I cannot stand up straight.
>(although this is a rare day that it is that bad). I think the back
>pain is from the endo not the accident. Do any of you suffer from such
>back pain? I thought I had read some place that endo can cause back
>pain. Today is a really bad day and I just feel like curling up in a
>ball and crying. I have children and that is not an option. I have to
>find a way to cope with this until I see the specialist. Any advice is
>greatly appreciated. I am really suffering and feeling sorry for myself
>today. Sorry but I knew you all would understand. Thanks for
>listening.
>Take care,
>
>--
>Kelli
>

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