Re: Adenomyosis and Pregnancy
From: rhian (anonymous@obgyn.net)
Wed Nov 8 14:35:30 2006
Hi All,
I have been searching for information on adenomyosis and pregnancy as
well, as you I have a long story of painful periods, endless bleeding,
numerous surgery including a reconstruction of my womb after the removal
of an adenomyosis lump and two failed attempts at IVF. I have been told
my best option is surrogacy as even if i did get pregnant 3 out of 4
pregenancies end in miscarrige due to the adenomyosis. I now have
another lump which enlarges every time I have IVF drugs to produce eggs,
currently it is the size of a 5 month pregnancy so I am stuck what to do
next??? I am looking for a specialist that deals with this area, but it
seems there arent many??
So if anybody knows of any fertility specialists who deal with
adenomyosis, please could you let me know as it is like trying to find a
needle in a haystack.
It is nice to be able to contact people who understand
Thanks
Rhian
At Mon, 20 Oct 2003, KaraLee wrote:
>
>Julie & Kelly,
>I have never posted to this site, and just found it today, but I have
>been searching for similar information sporadically since being
>diagnosed with adenomyosis 2 months ago. I had a cone biopsy for
>dysplasia CIN3-4 in 2000. The inexperienced military doctor I had at
>the time took what seems to be my whole cervix, and then it healed SHUT,
>stenotic, closed! I had two UNsuccessful dilations, then finally in Dec
>'02 I had a "hysterOTomy" (no - not a hysterECTomy)... another doc
>opened by uterus from my abdomin (like a c-section, but I wasn't
>pregnant) and created an opening from inside out, which worked, I now
>have an opening, but I believe I got adenomyosis from having my uterus
>opened. I have read adenomyosis can start after a c-section or from
>trauma to the uterus... so to my dismay, I now have an opening in my
>cervix but have to deal with adenomyosis! Part of me feels that I should
>have left the cervical stenosis alone, as it may have been better than
>adenomyosis.(?)
>
>I am 29, almost 30, I have been married for 2 1/2 years and we would
>love to start a family, but I've had one problem after another. Now my
>GYN doc has scheduled me for an HSG... not sure what that will tell me,
>but she said after that, regardless of the results she'll refer me to an
>infertility clinic. I've been searching for information on Adenomyosis
>& the possibilities of pregnancy for the past 2 months, but all I find
>is similar information as you presented below, particularly regarding
>hysterECTomy as the only real way of knowing if you have it and the only
>real way to get rid of it. I have never been diagnosed with
>endometriosis, however, after all this, it wouldn't surprise me if I got
>that too.
>
>OK, I'm rambling, sorry! I am wondering if I can still get pregnant,
>probably not on my own since I probably don't have any cervical mucus.
>But then what are the chances of a successful pregnancy with assistance.
>
>>From this site, it sounds like pregnancy is definitely possible, and not
>usually affected by adenomyosis. So, Julie, if you do not have any
>other problems, you should be able to get pregnant. However, I'm not
>sure how endometriosis affects pregnancy. A friend of mine had endo &
>easily got pregnant, but I don't know what level she had. My GYN said
>that hysterectomy is not an option as long as you want to get pregnant.
>Adeno can be dealt with, as long as the patient can live with the menses
>pain levels.
>
>If you find any more information, I would love to hear it. I feel bad
>that you two have this condition too, it's seems like such a mystery to
>the medical community. However, this site has had the most information
>I have seen yet.
>
>Good luck to both of you!!
>Kara
>
>At Tue, 7 Oct 2003, Kelly wrote:
>>
>>At Tue, 22 Aug 2000, Julie wrote:
>>>
>>>My doctor suspects I have an adenomyoma, I've been doing research to
>>>find out more about the subject. I was diagnosed with Stage III
>>>endometriosis at age 21 after having 10 years of pain. I'm 29 years
>>>old, getting married in October and want to start a family soon. I have
>>>not been able to find out any information regarding problems getting
>>>pregnant, or having children with adenomyosis - everyone talks about
>>>hysterectomy. Any thoughts or places to go for more information?
>>>
>>>--
>>>Julie
>>>
>>Julie, I'd be interested to know what you find out. If you or anyone
>>out there know, does andenomyosis simulate pregnancy? I work in
>>disability claims handling and I came across a claim where the lady's
>>uteris was extended to a term of 8-10 weeks as though she were pregnant
>>but she was diagnosed with adenomyosis. My mother had a hysterectomy
>>because of her adenomyosis at 34. Now, I'm 29 too and my physical
>>showed that my uteris was abnormally large. My doctor's first thoughts?
>>Was I pregnant. Well, I just test very faintly as positive but I have
>>been on birth control non stop and I suspect my excessive blood flow and
>>crippling cramps from previous months are related to adenomyosis. Could
>>my adenomyosis be causing a false positive however faint the little line
>>on the test strip is?
>>
>>--
>>Kelly
>>
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