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Re: Symptoms of cyst rupture?
From: Julie (anonymous@obgyn.net)
Mon Nov 6 16:45:00 2006
Hi Mary-- Hello, thanks for responding. I was scheduled to get
laparascopic cystectomy (I thought) on this Wednesday the 8th but when I
called today to find out what time I am supposed to check in for the
surgery, I was told it was supposed to be on Friday Nov. 3 and had been
cancelled. I have had a real nightmare getting anything done at this
hospital or getting any information, etc. They are terribly terribly
disorganized and no one there knows what anyone else is doing. I am
almost afraid to go in for the surgery now--I am afraid they will do the
wrong surgery and I'll wake up with a hysterectomy or my tubes tied or
something. But I don't have insurance and I'm getting this done on
their financial assistance program. If I go somewhere else I will have
to do the whole process of applying for financial aid again and there's
no telling how long that will take. I applied at this hospital in early
July and wasn't approved until October 30.
As far as the pain, it was extremely severe. I've broken an arm before
and I would say this was twice as bad, at least. I just didn't go to
the emergency department here because I'd dealt with them before when my
mother in law had cancer and I knew they were incompetent to make any
illness-related diagnosis. (The hospital that's doing my lap is in
another city.) Also, I had no insurance. I've gone to the ER only for
injuries, the last time was when I was 12 years old and had to get 16
stitches in my knee (I'm 38). I have read that cysts can "leak" without
a total rupture, so maybe there is less severe pain in that case and
that may have been what I experienced, if it was even related to
endometriosis at all. I also a have connective tissue disease that can
cause abdominal symptoms such as peritonitis w/o infection and it
probably could have been related to that as well. I will probably never
know for sure, I guess. THanks again for answering my post, hopefully
I'll be getting the surgery pretty soon.
At Fri, 3 Nov 2006, Mary wrote:
>
>At Wed, 1 Nov 2006, anonymous@obgyn.net wrote:
>>
>>At Wed, 1 Nov 2006, Heather wrote:
>>>
>>>At Wed, 1 Nov 2006, Julie wrote:
>>>>
>>>>Hello everyone, this is my first time to post a question here. This
>>>>June, I was diagnosed by my ob/gyn as having an unspecified adnexal mass
>>>>by pelvic exam and TV ultrasound. My CA-125 test was 360 (normal is
>>>>under 35) and I have a family history of ovarian cancer so my Dr.
>>>>referred me to a gynecologic oncologist for surgery. I saw the
>>>>oncologist in July and got another pelvic and ultrasound and she
>>>>diagnosed the mass as an endometrioma and also recommended surgery.
>>>>However since she doesn't think it's cancer, she assigned a regular
>>>>gynecologist to do the surgery. I don't have insurance and so I've been
>>>>struggling to get this hospital to approve me for charity surgery all
>>>>summer and I'm finally getting laparascopy next week. (I had a great
>>>>job and health insurance for years but I had to quit working because
>>>>none of the stupid doctors I saw could ever diagnose my illness.) After
>>>>reading all your posts about repeated surgeries I am not feeling very
>>>>optimistic about getting symptom relief, but at least I can find out for
>>>>sure that I don't have cancer.
>>>>
>>>>OK, here is my question: Have you had a cyst rupture, and does it feel
>>>>like this? About 4 or 5 times in the last several years, I have had
>>>>episodes of sudden severe abdominal/flank pain. The episodes would
>>>>often start when I made a twisting movement, like once I was turning my
>>>>body to get out of bed. The pain in some cases was bad enough to make
>>>>me break into cold sweats, turn pale and feel like I was going to pass
>>>>out. The last 2 times it happened, my insides were so traumatized that
>>>>I stopped having bowel movements for about 10 days each time and lost 15
>>>>pounds (ie 30 lbs total loss which I haven't gained back, yeah!).
>>>>Unfortunately I have an extreme aversion to going to the ER and no
>>>>insurance, so I have only gone to my GP for office visits when I went to
>>>>the doctor at all. The last time he diagnosed severe gastroenteritis,
>>>>but I was unable to afford any imaging tests so the only test I got was
>>>>a CBC that showed a high white cell count. Anyway, since reading up on
>>>>endometriosis and the symptoms of a cyst rupture I wonder if that has
>>>>been the cause of these severe pain episodes all along. Any advice or
>>>>comments would be welcome. Thank you so much.
>>>>
>>>>--
>>>>Julie M
>>>>
>>>Julie,
>>>
>>>I am no expert, but what you decribe sounds like you were possibly
>>>rupturing a cyst. I ruptured a cyst when I was 17 and the pain was so
>>>bad I wanted to die. My boyfriend took me to the hospital and they told
>>>me that is what had happened. What was unbelievable to me, was how
>>>little they can help. All they did was give me some tylenol 3 and a
>>>warm blanket. It was just awful, I don't wish that pain on anyone! I am
>>>so sorry you have had to go through it so many times. If you can get
>>>them to get rid of any further cysts before they rupture more, it will
>>>probably save you a lot of grief. Good for you for getting them to do
>>>surgery for you and good luck!
>>
>>Hmm, I have to agree with Julie here. This is my first time posting on
>>here so, my apologies if it's wrong.
>>
>>A rupturing cyst causes terrible pain, I had 2 rupture when I was 13,
>>which was less than a year ago. It made me miss loads of school and I
>>also ended up in the hospital a few times.
>>
>>However, I would get a Laparoscapy (sp?) just in case, as it could the
>>the cyst problem, or Endomitriosis, which I also have and it's quite
>>painful.
>>
>> Ultrasounds help too.
>>
>>--
>>Taylor
>>
>Julie,
>If I were you I would consider having surgery to remove the cyst. I am
>suffering with a chocolate cyst myself - and they cause this type of
>pain. Also if your CA125 test was that high, I would strongly encourage
>you to get it removed ASAP. Especially if you have a history of cancer.
>Chances are its not cancer because of your age, but why suffer and take
>that kind of risk with your life. Laprascopy can be used to remove this
>quite readily. I wish I could have mine removed laprascopically - but I
>can't. I had a ruptured chocolate cyst in the past and had emergency
>surgery via a laparotomy which makes me a poor candidate for laprascopy.
>
>Trust me, if your chocolate cyst ruptured, you would be hospitalized.
>It's not like other ovarian cysts - these suckers are nasty. Its like
>having a kidney stone or a burst appendix - you wouldn't be able to
>tolerate the pain at home. Plus, it can be dangerous if the fluid
>leaks. I'm going for surgery in 2 weeks, I would suggest you push for
>it with your doctor. Good luck.
>
>--
>Mary
>
--
Julie M
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