ENDO Messages for November, 2006: Re: What is the problem?

Re: What is the problem?

From: Alyson (anonymous@obgyn.net)
Mon Nov 6 06:56:44 2006

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In reply to: Rach: "What is the problem?"

I wish I could say that I haven't had the same doctor experience. My situation is a bit different in the sense that I have not had the hysterectomy, but I have been bounced from doctor to doctor. I've been to almost every OBGyn group in my area, took me five doctors to get diagnosed with endo. Since then I have seen the gastro enterologist, cardiologist, physical therapist, internist...had countless tests. No one can tell me why I have this recurring chest pain, why I don't seem to respond to any endo treatments on and on. It feels like an awful game sometimes, but we have to find a way to trudge on through because there is an answer...you just have to find that doctor who has the patience to talk it through with you and who will take the time to listen. I recently started seeing a new Gyn who is a traditional/naturopathic doctor. She has by far been the most willing to listen and to be honest enough to tell me that she (and she doesn't think anyone esle in my area) does not have the skill level to deal with my endo at this point and that I need to seek a specialist. Try talking to some friends about doctors they respect. There is also a site called EndoVictims (you can google it) that has a patient recommended doctor list categorized by state. Alyson

At Sat, 4 Nov 2006, Rach wrote: >
>I was diagnosed with endo after 2 lapro. surguries. I had a hyster.
>about 3 years ago and have experienced nothing but pain since. I almost
>always have to take something for pain. When I try to ignore it I am
>quickly reminded that it exists. My lower back hurts, my pevlic area is
>always reminding me that it wants attention for pain as well. The pain
>seems to go straight thru from front to back. This is so frustrating
>because the dr. has referred me to another that supposedly got rid of
>my adhesions....NOT. That dr. then sent me to a pain clinic where I
>received three injections in my back within 2 months. Pain is worse. I
>was then referred to urologist, he said I have an overactive bladder
>even after I told him I urinate about 2 times during the course of a
>workday. He resended that diagnoses and then gave me some med. that
>when I researched, said that women should not take it. Now they want me
>to go to a gastro dr. Has anyone ever played ping-pong? Well I am the
>ball. I am so tired of this and just want to pain to stop. Now I have
>a cyst on my ovaries but the ob says that his job is done. Go figure.
>Please, advice. I know I need another opinion but I am so afraid of
>this merry-go-round that I have experienced. What can I do?

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In reply to: Rach: "What is the problem?"

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