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Re: Symptoms of cyst rupture?From: Mary (anonymous@obgyn.net)Fri Nov 3 17:38:03 2006
At Wed, 1 Nov 2006, anonymous@obgyn.net wrote: > >At Wed, 1 Nov 2006, Heather wrote: >> >>At Wed, 1 Nov 2006, Julie wrote: >>> >>>Hello everyone, this is my first time to post a question here. This >>>June, I was diagnosed by my ob/gyn as having an unspecified adnexal mass >>>by pelvic exam and TV ultrasound. My CA-125 test was 360 (normal is >>>under 35) and I have a family history of ovarian cancer so my Dr. >>>referred me to a gynecologic oncologist for surgery. I saw the >>>oncologist in July and got another pelvic and ultrasound and she >>>diagnosed the mass as an endometrioma and also recommended surgery. >>>However since she doesn't think it's cancer, she assigned a regular >>>gynecologist to do the surgery. I don't have insurance and so I've been >>>struggling to get this hospital to approve me for charity surgery all >>>summer and I'm finally getting laparascopy next week. (I had a great >>>job and health insurance for years but I had to quit working because >>>none of the stupid doctors I saw could ever diagnose my illness.) After >>>reading all your posts about repeated surgeries I am not feeling very >>>optimistic about getting symptom relief, but at least I can find out for >>>sure that I don't have cancer. >>> >>>OK, here is my question: Have you had a cyst rupture, and does it feel >>>like this? About 4 or 5 times in the last several years, I have had >>>episodes of sudden severe abdominal/flank pain. The episodes would >>>often start when I made a twisting movement, like once I was turning my >>>body to get out of bed. The pain in some cases was bad enough to make >>>me break into cold sweats, turn pale and feel like I was going to pass >>>out. The last 2 times it happened, my insides were so traumatized that >>>I stopped having bowel movements for about 10 days each time and lost 15 >>>pounds (ie 30 lbs total loss which I haven't gained back, yeah!). >>>Unfortunately I have an extreme aversion to going to the ER and no >>>insurance, so I have only gone to my GP for office visits when I went to >>>the doctor at all. The last time he diagnosed severe gastroenteritis, >>>but I was unable to afford any imaging tests so the only test I got was >>>a CBC that showed a high white cell count. Anyway, since reading up on >>>endometriosis and the symptoms of a cyst rupture I wonder if that has >>>been the cause of these severe pain episodes all along. Any advice or >>>comments would be welcome. Thank you so much. >>> >>>-- >>>Julie M >>> >>Julie, >> >>I am no expert, but what you decribe sounds like you were possibly >>rupturing a cyst. I ruptured a cyst when I was 17 and the pain was so >>bad I wanted to die. My boyfriend took me to the hospital and they told >>me that is what had happened. What was unbelievable to me, was how >>little they can help. All they did was give me some tylenol 3 and a >>warm blanket. It was just awful, I don't wish that pain on anyone! I am >>so sorry you have had to go through it so many times. If you can get >>them to get rid of any further cysts before they rupture more, it will >>probably save you a lot of grief. Good for you for getting them to do >>surgery for you and good luck! > >Hmm, I have to agree with Julie here. This is my first time posting on >here so, my apologies if it's wrong. > >A rupturing cyst causes terrible pain, I had 2 rupture when I was 13, >which was less than a year ago. It made me miss loads of school and I >also ended up in the hospital a few times. > >However, I would get a Laparoscapy (sp?) just in case, as it could the >the cyst problem, or Endomitriosis, which I also have and it's quite >painful. > > Ultrasounds help too. > >-- >Taylor > Julie, If I were you I would consider having surgery to remove the cyst. I am suffering with a chocolate cyst myself - and they cause this type of pain. Also if your CA125 test was that high, I would strongly encourage you to get it removed ASAP. Especially if you have a history of cancer. Chances are its not cancer because of your age, but why suffer and take that kind of risk with your life. Laprascopy can be used to remove this quite readily. I wish I could have mine removed laprascopically - but I can't. I had a ruptured chocolate cyst in the past and had emergency surgery via a laparotomy which makes me a poor candidate for laprascopy. Trust me, if your chocolate cyst ruptured, you would be hospitalized. It's not like other ovarian cysts - these suckers are nasty. Its like having a kidney stone or a burst appendix - you wouldn't be able to tolerate the pain at home. Plus, it can be dangerous if the fluid leaks. I'm going for surgery in 2 weeks, I would suggest you push for it with your doctor. Good luck.
-- Mary
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