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Re: Symptoms of cyst rupture?From: Heather (anonymous@obgyn.net)Wed Nov 1 14:40:34 2006
At Wed, 1 Nov 2006, Julie wrote: > >Hello everyone, this is my first time to post a question here. This >June, I was diagnosed by my ob/gyn as having an unspecified adnexal mass >by pelvic exam and TV ultrasound. My CA-125 test was 360 (normal is >under 35) and I have a family history of ovarian cancer so my Dr. >referred me to a gynecologic oncologist for surgery. I saw the >oncologist in July and got another pelvic and ultrasound and she >diagnosed the mass as an endometrioma and also recommended surgery. >However since she doesn't think it's cancer, she assigned a regular >gynecologist to do the surgery. I don't have insurance and so I've been >struggling to get this hospital to approve me for charity surgery all >summer and I'm finally getting laparascopy next week. (I had a great >job and health insurance for years but I had to quit working because >none of the stupid doctors I saw could ever diagnose my illness.) After >reading all your posts about repeated surgeries I am not feeling very >optimistic about getting symptom relief, but at least I can find out for >sure that I don't have cancer. > >OK, here is my question: Have you had a cyst rupture, and does it feel >like this? About 4 or 5 times in the last several years, I have had >episodes of sudden severe abdominal/flank pain. The episodes would >often start when I made a twisting movement, like once I was turning my >body to get out of bed. The pain in some cases was bad enough to make >me break into cold sweats, turn pale and feel like I was going to pass >out. The last 2 times it happened, my insides were so traumatized that >I stopped having bowel movements for about 10 days each time and lost 15 >pounds (ie 30 lbs total loss which I haven't gained back, yeah!). >Unfortunately I have an extreme aversion to going to the ER and no >insurance, so I have only gone to my GP for office visits when I went to >the doctor at all. The last time he diagnosed severe gastroenteritis, >but I was unable to afford any imaging tests so the only test I got was >a CBC that showed a high white cell count. Anyway, since reading up on >endometriosis and the symptoms of a cyst rupture I wonder if that has >been the cause of these severe pain episodes all along. Any advice or >comments would be welcome. Thank you so much. > >-- >Julie M > Julie, I am no expert, but what you decribe sounds like you were possibly rupturing a cyst. I ruptured a cyst when I was 17 and the pain was so bad I wanted to die. My boyfriend took me to the hospital and they told me that is what had happened. What was unbelievable to me, was how little they can help. All they did was give me some tylenol 3 and a warm blanket. It was just awful, I don't wish that pain on anyone! I am so sorry you have had to go through it so many times. If you can get them to get rid of any further cysts before they rupture more, it will probably save you a lot of grief. Good for you for getting them to do surgery for you and good luck!
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