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Re: Hip leg buttock pain / sciatic endo / link to a summary of the condition From: anonymous@obgyn.net Sun Oct 29 20:24:46 2006 Messages sorted by: [ date ][ thread ][ subject ][ author ] Next message: Pam: "Re: Anyone on Provera?" Previous message: lisa: "Re: Anyone on Provera?" In reply to: anonymous@obgyn.net: "Re: Hip leg buttock pain / sciatic endo / link to a summary of the condition" Not sure what nerve your doc treated but if it was the sciatic nerve without you mentioning a sciatic problem - You are very lucky indeed! It appears that more often than not when a normal gyn surgeon does an investigative lap they dont immediately go looking for endo on the sciatic nerve. Sciatic endo is extra pelvic (not in the pelvic cavity) endo when its on the sciatic nerve. There are a lot of women with a long term dx of endo (or no dx but long term pain!) who have been trying for years to get an answer to their hip and leg problems and often sciatic endo isn't even suggested to them as a possibility. The other thing to bear in mind is that if the endo is a commonly seen presentation (ie an obvious leision on or near the nerve)then yes it can be excised. But endo can be hidden in the nerve or even invisible. I was shocked to read yesterday in one report that 25% of tissue removed from the pelvis otherwise Asymptomatic women (not having trouble related to endo) was shown to have endo cells in it. It can be invisible and very hard to treat surgically. I am happy for you that the doc got it off nerves though! At Sun, 29 Oct 2006, anonymous@obgyn.net wrote: > >Just an FYI of something that surprized me. When I had my post-op after >excision, the doctor showed me a photo of endo on a nerve and said he >removed it. I didn't know it was possiable to remove endo from nerves, >but apparently it is. > >Jenn > >At Sun, 29 Oct 2006, anonymous@obgyn.net wrote: >> >>Hi all >> >>Well I am still working on http://www.freewebs.com/endometriosis for women with >>sciatic type endo. I was given permission to upload a copy of the ERC's >>sciatic endo info sheet. It can be found here... >>http://www.freewebs.com/endometriosis/sciaticendo.pdf >>It is a pdf file. >> >>I highly reccomend reading it if you have undx'd pain in the hip/leg. >> >>In the first few paragraphs somewhere it states that the problem starts >>in the left leg. Ignore that as it can start in the left, right or both >>legs and it can swap and change too. Further on in the info it talks >>about a woman who had it in her right leg. >> >>This article summarises the medical literature reports of sciatic endo. >>As you can see its pretty sketchie but hey - at least there is proof it >>exists. There are a few doctors around who have a bit of an idea how to >>treat it too. Only a very few though. >> >>Perhaps if you think this condition may apply to you, print it off and >>take it to your doctor to discuss it. >> >>Hope it helps someone. >> >>Angela >> >>-- >>Angela >>long time endo survivor >> -- Angela long time endo survivor Next message: Pam: "Re: Anyone on Provera?" Previous message: lisa: "Re: Anyone on Provera?" In reply to: anonymous@obgyn.net: "Re: Hip leg buttock pain / sciatic endo / link to a summary of the condition"

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