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Re: bladder problems & endo?

From: Tiffany (anonymous@obgyn.net)
Sat Oct 28 14:52:08 2006


HI, I am 25 and have been diagnosed with the same thing. I was diagnosed at age 23 with Interstitial Cystitis and then went and had a lap done and found a weird looking piece inside that came back with Endo. I DO understand how you feel. How hard it is to diagnose which one is being the problem.

At Mon, 23 Oct 2006, natasha wrote: >
>At Sun, 22 Oct 2006, holly wrote:
>>
>>i had endo on the outside of my bladder. during my first lap, they were
>>able to treat it. later on, i developed interstitial cystitis which is
>>inside the bladder. when i had my second lap, they did a cystoscopy to
>>diagnose it and distended my bladder. it helped. the endo grew back of
>>course, and the interstitial cystitis flares up all the time. but at
>>least i know what is wrong. i've had 2 cystoscopies to make sure the
>>endo didn't invade the inside of the bladder, and i'm relieved to know
>>it didn't.
>>
>>the symptoms of both are very similar. the clue though that something
>>else other than endo was going on was that i had blood in my urine. i
>>had never had blood before, but once the IC developed, it's been there
>>ever since.
>>
>>hope you find an answer. and hope it's something that can be treated.
>>
>>At Sun, 22 Oct 2006, natasha wrote:
>>>
>>>At Sun, 22 Oct 2006, anonymous@obgyn.net wrote:
>>>>
>>>>Hi
>>>>Others will be able to answer better but...
>>>>
>>>>My sister was complaining of the same thing. She had a hyst a couple of
>>>>years a go and her bladder got damaged. The problem of always feeling
>>>>she needed to go started after that. But she wouldn't go the doc about
>>>>it as she had a bad experience with the hyst.
>>>>
>>>>Anyway she finally caved and she had and ultrasound a week ago. She has
>>>>a hernia inside. Thats all I know as we haven't spoken since. I do
>>>>know she has to have a lap to get it fixed.
>>>>
>>>>When they do a lap, they really should be looking for abnormalities of
>>>>all the abdominal organs. from the outside of them anyways.
>>>>
>>>>A cystoscopy is a different operation where they put a camera into the
>>>>bladder to check for abnormailities, often done after having blood and
>>>>clots in the urine not associated with infection.
>>>>
>>>>I would say that the problem causing the need to go all the time should
>>>>be seen from doing the lap without a cystoscopy. It could be endo,
>>>>adhesions, or a hernia (which I guess they would fix whilst in there). I
>>>>am sure it could be other things too, just dont know the names of them
>>>>lol.
>>>>
>>>>Hope that helps a little
>>>>
>>>>Angela
>>>>
>>>>At Sun, 22 Oct 2006, Becca wrote:
>>>>>
>>>>>Curious, I have read online that endo and bladder problems can be
>>>>>related. I'm having a horrible time with my bladder. It doesn't hurt
>>>>>at all, no burning or anything. I just ALWAYS feel like I need to go. I
>>>>>can go to the bathroom, and no kidding 5 minutes later I feel like I
>>>>>need to go again. I can hold it, and it doesn't hurt, it's just
>>>>>uncomfortable because I feel like I really need to go. When I went to
>>>>>the dr I was having the problems (a few weeks ago), and my urine was
>>>>>fine. I'm scheduled for a lap on nov 9. My question is, does this
>>>>>sound endo related? Also, when doing the lap, do they normally check the
>>>>>bladder too?
>>>>>Thanks so much!
>>>>i think if you got endo behind the bladder it pushes against it and makes you go toilet more
>>>>
>>>>--
>>>>Angela
>>>>long time endo survivor
>>>>
>just wondering i get stinging wen i go toilet from inside when i was
>first diagonised i got kidney infection and had blood in my urine is
>stinging a sign of itestinal cystitis my endo is behind my bladder
>amongst other places to






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