ENDO Messages for October, 2006: Re: 'Feeling VERY alone'

Re: 'Feeling VERY alone'

From: Jenea (anonymous@obgyn.net)
Wed Oct 25 11:04:05 2006

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In reply to: Shell: "'Feeling VERY alone'"

Shell, I know just how you fell. I have endo and have had to have my gall bladder out. I am 32 and have two children from a previous marraige. My husband now has no biological children. When we got married 3 years ago our dream was to get married have a baby and build a new home. All that was shattered when I was diagnosed last April. I have been on fertility drugs and they have made my pain worse.I had to have my Gall Bladder removed just this last June due to the disease. I even had a doctor want to drill holes in my ovaries!!! Everyone just looks at me and says, " I thought you had that surgery, you should be better now." No one understands it never gets better. Docs tell me they are not concerned with my Endo just getting me preggers, because that is what I want. But I think if they concentrate more on the Endo then I might actually get preggers. Those Docs were wrong to treat you that way. All you have described are symptoms of Endo that I have as well. I don't see how they can call them selves specialist after that. PLease don't give up. There is a website you should check out. http://www.endometriosisassn.org/ It has helped me alot. I even found a support group through it.

YOU ARE NOT ALONE, Jenea'

At Sat, 21 Oct 2006, Shell wrote: >
>Hi ladies,this is Shell and I feel so alone that I feel like giving up
>on reaching out.Yesterday I rode the greyhound bus 5 hours to the city
>to finally see specialist.It was a horrible trip.Then when I got there
>they had a whole team to help me .I thought at last someone who will
>listen.
>They came back and told me there was NOTHING to do for severe adhesions
>and to go home and see my dr. that referred me to them cause she
>doesn't know whwt to do.I broke down started crying.Well then they sent
>me for ultrasounds which shows nothing guess to act like there doing
>something.
>Also tested my gallbladder cause I might need that out.But they
>disregarded my leg pain,headaches,nausea and other symtoms and told me
>its not related to go see a general practitioner.Well I'd like to know
>how its not related when i didnt have any of these things prior to
>endo.I felt treated like a hypocondriac.They made me an appointment to
>see yet another person in February,thats four months from
>now!!!!!!!!!!!!They also are not helping me get disability benifits.I am
>carless,homeless,penniless.I'm staying right now with some church folks
>who are very kind.When I got back to there house they asked me what
>happened.when I told them they said that maybe its not that bad if the
>dr say so.WELL tell that to my pain ,I thought.
>I feel like I have to try to go back to work and I guess just hemmorage
>like I did last time or wait till I pass out or something,I don't know
>anymore and it seems I can't talk to anyone around me about it.Please
>respond,I really need some support right now.
>Thanx

Next message: lisa: "Re: Megace question"
Previous message: Melissa: "Re: Megace question"
In reply to: Shell: "'Feeling VERY alone'"

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