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Re: 'Feeling VERY alone'
From: Ami (anonymous@obgyn.net)
Mon Oct 23 07:20:32 2006
At Mon, 23 Oct 2006, Meredith wrote:
>
>Shell, it can be so frustrating!!! I am so sorry you are having such a
>difficult time! When i first had symptoms of endo, I had no insurance
>and it took me 5 years to be diagnosed - by then i was stage iv.
>
>Please know that although we all have different symptoms and problems we
>are all always here for support! I never thought I would need these
>online support groups, but they have truly helped me deal with being a
>29 year old that has only dreamed of being a stay at home mom and is now
>having a total hysto without having any children! point is - you are
>NEVER alone!
>
>At Sun, 22 Oct 2006, anonymous@obgyn.net wrote:
>>
>>Shell
>>I sent you a letter and some links/info to the address
>>joshuvasmom@yahoo.com
>>
>>can you let me know if it all turned up alright?
>>
>>Take good care
>>
>>Hugs
>>
I to am 30 years old and am having a total hysterectomy on the 14th and
never thought i owuld need these support groupls. But to my amazement
its been a real help to me and my husband. I have been real miserable
lately so i read this to my husband and then he really understands a
little bit more. But i know you guys are always here to help as so am
i. If i can lend a little help someone elses way i would be glad to do
it. Heres to pain free days.
>>Angela
>>
>>>At Sat, 21 Oct 2006, Mary wrote:
>>>>
>>>>At Sat, 21 Oct 2006, Shell wrote:
>>>>>
>>>>>Hi ladies,this is Shell and I feel so alone that I feel like giving up
>>>>>on reaching out.Yesterday I rode the greyhound bus 5 hours to the city
>>>>>to finally see specialist.It was a horrible trip.Then when I got there
>>>>>they had a whole team to help me .I thought at last someone who will
>>>>>listen.
>>>>>They came back and told me there was NOTHING to do for severe adhesions
>>>>>and to go home and see my dr. that referred me to them cause she
>>>>>doesn't know whwt to do.I broke down started crying.Well then they sent
>>>>>me for ultrasounds which shows nothing guess to act like there doing
>>>>>something.
>>>>>Also tested my gallbladder cause I might need that out.But they
>>>>>disregarded my leg pain,headaches,nausea and other symtoms and told me
>>>>>its not related to go see a general practitioner.Well I'd like to know
>>>>>how its not related when i didnt have any of these things prior to
>>>>>endo.I felt treated like a hypocondriac.They made me an appointment to
>>>>>see yet another person in February,thats four months from
>>>>>now!!!!!!!!!!!!They also are not helping me get disability benifits.I am
>>>>>carless,homeless,penniless.I'm staying right now with some church folks
>>>>>who are very kind.When I got back to there house they asked me what
>>>>>happened.when I told them they said that maybe its not that bad if the
>>>>>dr say so.WELL tell that to my pain ,I thought.
>>>>>I feel like I have to try to go back to work and I guess just hemmorage
>>>>>like I did last time or wait till I pass out or something,I don't know
>>>>>anymore and it seems I can't talk to anyone around me about it.Please
>>>>>respond,I really need some support right now.
>>>>>Thanx
>>>>
>>>>Don't give up. Make sure you see another doctor - do you have an
>>>>ob/gyn? I've had many doctors dismiss my symptoms only to find that I
>>>>had a large endometrioma on my right ovary!!
>>>>
>>>>This disease is real. have you been diagnosed with a lap? See if you
>>>>can find an ob/gyn in your area who is good and get them to do a
>>>>diagnostic lap. Do you have health insurance? If not, a lot of states
>>>>have a plan where you can qualify for free health insurance if you make
>>>>under a certain amount of money. Keep fighting for yourself - your
>>>>worth it!!
>>>>
>>>>God bless,
>>>>
>>>>--
>>>>Mary
>>>>
>>>Thanks Mary,Yes I have had 7 laps and have a gyno.I have had full
>>>hyterectomy but still have the endo.I'm sure something will work
>>>out.Thanks for your encouragement
>>
>>--
>>Angela
>>long time endo survivor
>>
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