Re: 'Feeling VERY alone'
From: Meredith (anonymous@obgyn.net)
Mon Oct 23 00:22:53 2006
Shell, it can be so frustrating!!! I am so sorry you are having such a
difficult time! When i first had symptoms of endo, I had no insurance
and it took me 5 years to be diagnosed - by then i was stage iv.
Please know that although we all have different symptoms and problems we
are all always here for support! I never thought I would need these
online support groups, but they have truly helped me deal with being a
29 year old that has only dreamed of being a stay at home mom and is now
having a total hysto without having any children! point is - you are
NEVER alone!
At Sun, 22 Oct 2006, anonymous@obgyn.net wrote:
>
>Shell
>I sent you a letter and some links/info to the address
>joshuvasmom@yahoo.com
>
>can you let me know if it all turned up alright?
>
>Take good care
>
>Hugs
>
>Angela
>
>>At Sat, 21 Oct 2006, Mary wrote:
>>>
>>>At Sat, 21 Oct 2006, Shell wrote:
>>>>
>>>>Hi ladies,this is Shell and I feel so alone that I feel like giving up
>>>>on reaching out.Yesterday I rode the greyhound bus 5 hours to the city
>>>>to finally see specialist.It was a horrible trip.Then when I got there
>>>>they had a whole team to help me .I thought at last someone who will
>>>>listen.
>>>>They came back and told me there was NOTHING to do for severe adhesions
>>>>and to go home and see my dr. that referred me to them cause she
>>>>doesn't know whwt to do.I broke down started crying.Well then they sent
>>>>me for ultrasounds which shows nothing guess to act like there doing
>>>>something.
>>>>Also tested my gallbladder cause I might need that out.But they
>>>>disregarded my leg pain,headaches,nausea and other symtoms and told me
>>>>its not related to go see a general practitioner.Well I'd like to know
>>>>how its not related when i didnt have any of these things prior to
>>>>endo.I felt treated like a hypocondriac.They made me an appointment to
>>>>see yet another person in February,thats four months from
>>>>now!!!!!!!!!!!!They also are not helping me get disability benifits.I am
>>>>carless,homeless,penniless.I'm staying right now with some church folks
>>>>who are very kind.When I got back to there house they asked me what
>>>>happened.when I told them they said that maybe its not that bad if the
>>>>dr say so.WELL tell that to my pain ,I thought.
>>>>I feel like I have to try to go back to work and I guess just hemmorage
>>>>like I did last time or wait till I pass out or something,I don't know
>>>>anymore and it seems I can't talk to anyone around me about it.Please
>>>>respond,I really need some support right now.
>>>>Thanx
>>>
>>>Don't give up. Make sure you see another doctor - do you have an
>>>ob/gyn? I've had many doctors dismiss my symptoms only to find that I
>>>had a large endometrioma on my right ovary!!
>>>
>>>This disease is real. have you been diagnosed with a lap? See if you
>>>can find an ob/gyn in your area who is good and get them to do a
>>>diagnostic lap. Do you have health insurance? If not, a lot of states
>>>have a plan where you can qualify for free health insurance if you make
>>>under a certain amount of money. Keep fighting for yourself - your
>>>worth it!!
>>>
>>>God bless,
>>>
>>>--
>>>Mary
>>>
>>Thanks Mary,Yes I have had 7 laps and have a gyno.I have had full
>>hyterectomy but still have the endo.I'm sure something will work
>>out.Thanks for your encouragement
>
>--
>Angela
>long time endo survivor
>
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