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Re: 'Feeling VERY alone'

From: Ainslie (anonymous@obgyn.net)
Sat Oct 21 11:28:48 2006


Shell, I have been going through the same feelings. My life totally changed when I found out about my endo. You are NOT alone! Do not give up because there is so much more to life than this pain you are going through right now. I wish I could talk to you in person and give you the biggest hug ever. My whold life fell like it was falling apart. I had no support from the person I wias with during this time and he left. I have had to take each day slowly and remind myself that this will pass. There is a plan for your life and this is only a tough part. If you ever need to talk, please write me. At Sat, 21 Oct 2006, Mary wrote: >
>At Sat, 21 Oct 2006, Shell wrote:
>>
>>Hi ladies,this is Shell and I feel so alone that I feel like giving up
>>on reaching out.Yesterday I rode the greyhound bus 5 hours to the city
>>to finally see specialist.It was a horrible trip.Then when I got there
>>they had a whole team to help me .I thought at last someone who will
>>listen.
>>They came back and told me there was NOTHING to do for severe adhesions
>>and to go home and see my dr. that referred me to them cause she
>>doesn't know whwt to do.I broke down started crying.Well then they sent
>>me for ultrasounds which shows nothing guess to act like there doing
>>something.
>>Also tested my gallbladder cause I might need that out.But they
>>disregarded my leg pain,headaches,nausea and other symtoms and told me
>>its not related to go see a general practitioner.Well I'd like to know
>>how its not related when i didnt have any of these things prior to
>>endo.I felt treated like a hypocondriac.They made me an appointment to
>>see yet another person in February,thats four months from
>>now!!!!!!!!!!!!They also are not helping me get disability benifits.I am
>>carless,homeless,penniless.I'm staying right now with some church folks
>>who are very kind.When I got back to there house they asked me what
>>happened.when I told them they said that maybe its not that bad if the
>>dr say so.WELL tell that to my pain ,I thought.
>>I feel like I have to try to go back to work and I guess just hemmorage
>>like I did last time or wait till I pass out or something,I don't know
>>anymore and it seems I can't talk to anyone around me about it.Please
>>respond,I really need some support right now.
>>Thanx
>
>Don't give up. Make sure you see another doctor - do you have an
>ob/gyn? I've had many doctors dismiss my symptoms only to find that I
>had a large endometrioma on my right ovary!!
>
>This disease is real. have you been diagnosed with a lap? See if you
>can find an ob/gyn in your area who is good and get them to do a
>diagnostic lap. Do you have health insurance? If not, a lot of states
>have a plan where you can qualify for free health insurance if you make
>under a certain amount of money. Keep fighting for yourself - your
>worth it!!
>
>God bless,
>
>--
>Mary
>





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