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Re: Endo pain REALLY bad at night...does anyone else have this?
From: Ainslie (anonymous@obgyn.net)
Wed Oct 4 20:05:10 2006
I suffered for months with a horrible pain in my left side. After
months of pain I could not walk. I never slept. I would walk around my
apartment pacing or try to lay down on the floor. It was the worst pain
I have ever been in. I understand how bad it can be and was at a point
where over the counter drugs no longer worked. I ended up having
surgery and am taking Lupron shots once a month. I am sorry you have
been in so much pain.
At Wed, 4 Oct 2006, anonymous@obgyn.net wrote:
>
>At Mon, 15 Mar 2004, anonymous@obgyn.net wrote:
>>
>>Mine is just the opposite. I generally feel better at night. Although
>>I have had cramps etc at night, I usually dread getting up because the
>>minute I do it starts. During periods I get up 1/2 hour early to take
>>pain medications, then lay back down and hope they have time to start
>>working before I have to get up and face the pain.
>>
>>Maybe it's because of where it is growing on each of us?
>>
>>At Sun, 14 Mar 2004, Katia wrote:
>>>
>>>I think my pain is worse at night too. A few times a week i wake up in
>>>terrible pain, but i wake up in the middle of the night regardless. I
>>>have trouble sleeping regardless of pain, but it's only worse when endo
>>>is thrown into the mix. Ambien is my only saving grace. Not only does
>>>it put you to sleep but it keeps you from waking up in the middle of the
>>>night. Unfortunately some doctors are hesitant to prescribe it on a
>>>long term basis because it is very addictive.
>>>
>>>At Sat, 13 Mar 2004, Melissa wrote:
>>>>
>>>>I didn't know I had endo until one day I was rushed to hospital with
>>>>terrible stomach pains. A big operation followed where they tried to
>>>>remove adhesions caused by endo and drain cysts (but my uterus is still
>>>>attached to my bowel). After op pain went away - also started taking
>>>>synarel. Had 2 periods while on synarel - first wasn't so bad. But,
>>>>since the second period I've had constant pain (for almost 2 months
>>>>now). But, the pain is really really bad at night. I go to bed taking
>>>>pain killers (digesic) then I wake up between 1-3 with terrible terrible
>>>>pains in my lower left groin, back and legs. Pacing the floor gives
>>>>tempoary relief but I'm so exhausted to walk. So I walk/take
>>>>baths/cry/watch tv/take more pain killers/live with the hotbottle until
>>>>about 9-10am when the pain starts to fade and I can had a fairly
>>>>reasonable day if I don't do too much. However, I'm too exhausted
>>>>mentally & physically to go to work so have had heaps of time off, I'm
>>>>reluctant to go too far from home in case the pain gets too bad.
>>>>
>>>>Does anyone else have this really extreme pain every night?
>>>>Melissa
>>>>
>>>>At Tue, 23 Sep 2003, Sandra wrote:
>>>>>
>>>>>I have been having pain in my right ovary area for about a year but only
>>>>>at ovalation time and when I first got it, I thought I was having an
>>>>>appendix attack. My GP told me that the pain at ovalation was 'normal'.
>>>>>The pain starts during the night between day 11 to day 14. (time
>>>>>usually between 2 - 4 am) and can last from 1/2 hour to 2-3 hours. It
>>>>>is really sharp and it feels like my bowel is full and I need to do a
>>>>>bowel movement but there is 'nothing'. Saw a Gyno in July who also told
>>>>>me that it was normal, but now I am booked to have a laparoscopy in late
>>>>>octber. Gyno is not sure what it is but think it is edo. I also have a
>>>>>5cm fibroid in the subserosal area. Doctors don't think that this is
>>>>>causing the pain. Would be interested in people's thoughts etc are and
>>>>>if anybody else has had the same type of pain. Also, I have had wind,
>>>>>heavy periods (clotting), periods are between 21 and 30 days and I get
>>>>>the pain only between days 11 and 14. Today is day 14, so I know I will
>>>>>be pain free for at least another month.
>>>>>
>>>>>--
>>>>>Sandra
>>>>>
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>>>>>At Mon, 22 Sep 2003, melanie wrote:
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>>>>>>At Mon, 22 Sep 2003, Judy wrote:
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>>>>>>>About two years ago I had an excrutiating pain in my right side. I went
>>>>>------------------------------------------------------------------------------
>>>>>>>to the doctor she, not even my own doctor told me that she thought it
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>>>>>>>was my appendix and sent me to a surgeon who had the same kind of
>>>>>------------------------------------------------------------------------------
>>>>>>>instincts as her. I had my appendix removed and the pain still
>>>>>>>persisted so I went back to my GP and he sent me to a gynae thinking
>>>>>>>that I might have endometriosis. I could only see this gynae a month
>>>>>>>after I saw my GP and the pain was so severe I couldn't even go a day
>>>>>>>without pain killers. I went to see the gynae and he did an examination
>>>>>>>but couldn't see anything wrong. After many ultra sounds and x-rays he
>>>>>>>sent me to the same surgeon that removed my appendix in turn he sent me
>>>>>>>for more x-rays. Whereafter he told me that I had irritable bowel
>>>>>>>syndrome, he gave me medication for this, but the pain still persisted
>>>>>>>after the medication was finished and I now 2 yrs later am still having
>>>>>>>very severe pain in the abdominal area. I still live on pain killers a
>>>>>>>week before my period and during it. Also after my period is finished
>>>>>>>the pain is so severe I have to lye down.
>>>>>>
>>>>>>I have been in the same situation....I have been having significant
>>>>>>abdominal/pelvic pain for almost a year....it has hurt so bad at times
>>>>>>that I thought something was bursting inside of my body and that I
>>>>>>needed to go to the hospital....I have been the same route you have and
>>>>>>have many ultrasounds and x-rays/catscans, etc, only to find
>>>>>>nothing....my first gyno thought it might have been a GI problem but I
>>>>>>ruled that out...finally my general practitioner suggested endometriosis
>>>>>>to me, not even my freaking gyno! I have also seen another doctor who
>>>>>>dismissed my pain and made me think that it was all in my head...now i
>>>>>>am onto doctor number 3, going next month, and hopefully things will be
>>>>>>better...i am dying to just have somebody listen to me and acknowledge
>>>>>>the pain that I am experiencing....I can not believe how uninformed
>>>>>>doctors are about this disease....but i am determined to keep looking
>>>>>>until i find a competent doctor!
>>>>>
>>>--
>>>Katia
>>>
>>>>>Sylvia J.
>
>>>>>>October 4, 2006
>
>Well I think i know how you guyz all feel
>I have the pain that I think all of u guyz are going through.. I have
>been suffering for like 2 years straight with the same pain. I feel it
>when I wake up and when I go to sleep. When I go to sleep but it is
>only on my right side kind of by my ovary. Well when I first had the
>pains I went to the Dr. they had told me that it was just a U.T.I . So
>they gave me some mediceine for that. After a while when it didnt want
>to go away i went back. They had told me there that it was my apendix,
>after a few ultrasounds and x-rayz. So They took my appendiz out
>thinkin that after they do that that the pains would go away. Well at
>first I have to say that it did.. Then after a while it came back. So
>I went back to the same Dr. He told me that he had no clue why the pain
>haden't went away. SO he sent me to a Speacialist a gastrologist. Well
>he did a gastrointestinal endoscopy (upper) and he had diagnosed me with
>I.B.S., and acid reflux disease. He gave me Some medication and told me
>if i took it, it would take away my abdominal pains and the heartburn
>that i would get. Well it still hasnt gone away. And I still have the
>pains But now it has gotten worse. So all I can do is see if i find a
>better Dr. and see if he can really tell me whats going on.
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