ENDO Messages for September, 2006: Re: How do you work?

Re: How do you work?

From: Alyson (anonymous@obgyn.net)
Sat Sep 30 09:30:54 2006

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In reply to: Maura: "How do you work?"

Maura, It can be very difficult finding a way to deal with the chronic pain that can come with this diease. I have a very physically demanding job and have had to find different methods of pain management to help me get through it. I have been very honest and up front with my boss. She makes an effort to understand. I think it is especially hard though for some women to sympathize because their only frame of reference is their period pain. It can be hard to explain that what you are dealing with is chronic and goes well beyond monthly cramps. In spite of the difficulty in understanding, I have always been allowed to take work home on days that I just can't manage to sit at my desk. Days when I have to be in the field are a bit more challenging. I think the best advice I can provide is for you to start seeking out various pain management techniques. That can be a combination of home remedies and medical assistance. I drink ginger tea to settle my stomach and use the Therma Care heat patches (they hide nicely under your clothes) to dull some of the pain. I also rely on pain medication in small doses to take the edge off at work. In addition I have used accupuncture for pain management, yoga, and am now in physical therapy. I'm also reading the book Barbara recommended and have found a little pain relief with changing my diet. I wish I could say that there is one thing that works, or that I am pain free. I think you just have to start trying things, combining efforts, and see what helps you find some relief. It may be that you can find a way to manage your pain just enough to let you return to even a light schedule. Alyson

At Fri, 29 Sep 2006, Maura wrote: >
>I am 23 years old and on September 1 was scheduled for lap surgery which
>turned into a C-secton procedure to remove 3 large endometriosis tumors
>off of my ovaries along with dozens of adhesions and endometriosis spots
>throughout my reproductive area. I have been misdiagnosed for years and
>finally can put a name on the pain I have been experiencing. Like all
>of us, I went through the terrible emotional rollercoaster this disease
>causes. Everyone thought it was in my head and there were constant
>whispers behind my back. Along with severe endometriosis I was
>diagnosed with the chronic pelvic pain that all too commonly accompanies
>the disease. I am in constant severe pain. I have been out of work for
>5 months. I am also normally a full time student trying to obtain a
>bachelors degree but the past 2 years have been lucky to pass 2 classes
>a semester due to absences. I now take internet courses. I have been
>struggling financially because I have no income and bills to pay (If it
>weren't for my boyfriend I'd be in real trouble) and do not know how I
>am going to be able to work 40 hours a week again. So how does everyone
>with endometriosis do it? I can suck it up but what quality of life is
>that? Does our government have anything to help support us besides going
>on disability? I am just lost and looking for some guidance. No one
>else seems to understand.
>Thanks,
>
>Maura
>Pittsburgh, PA

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