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From: Maura (anonymous@obgyn.net)
Fri Sep 29 14:05:55 2006


I am 23 years old and on September 1 was scheduled for lap surgery which turned into a C-secton procedure to remove 3 large endometriosis tumors off of my ovaries along with dozens of adhesions and endometriosis spots throughout my reproductive area. I have been misdiagnosed for years and finally can put a name on the pain I have been experiencing. Like all of us, I went through the terrible emotional rollercoaster this disease causes. Everyone thought it was in my head and there were constant whispers behind my back. Along with severe endometriosis I was diagnosed with the chronic pelvic pain that all too commonly accompanies the disease. I am in constant severe pain. I have been out of work for 5 months. I am also normally a full time student trying to obtain a bachelors degree but the past 2 years have been lucky to pass 2 classes a semester due to absences. I now take internet courses. I have been struggling financially because I have no income and bills to pay (If it weren't for my boyfriend I'd be in real trouble) and do not know how I am going to be able to work 40 hours a week again. So how does everyone with endometriosis do it? I can suck it up but what quality of life is that? Does our government have anything to help support us besides going on disability? I am just lost and looking for some guidance. No one else seems to understand. Thanks,

Maura Pittsburgh, PA






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