Re: no period after lupron treatment complete
From: Alpha (anonymous@obgyn.net)
Fri Sep 29 06:15:05 2006
Hi Inny,
I am so sorry to hear what all you have been going through,
Probably you may want to switch your doctor to find someone who could
do you a Lap. Try to find a doctor who will listen to you.
DO waste any more time, as you dont deserve to be in pain anymore.
Lupron does make a person lose bone mass, did you take Calicum
while on Lupron ?? I read a message quiet back on this forums that
changing
to an organic low fat diet helps endo very much? Have you tried it ?
I didnt even know I had stage 4 endo, I had no symptoms except not able
to
conceive. Fortunately I didnt have any side effects while on Lupron
except for occasional hot flashes, now that my 3 month treatment is
over,
I am having more frequent hot flashes.
I wish you all the Best. Keep sharing.
Thanks,
At Thu, 28 Sep 2006, anonymous@obgyn.net wrote:
>
>Hi Alpha,
>
>I have all the symptoms of endo, and the doctors have been suspecting it
>for about 10 years, but I have only been in chronic pain for 1 year now.
>In that time I have found every door towards a laparoscopy closed to me.
>For some reason nobody wants to do it. I am in the pain management,
>doing everything I can, from acupuncture to hypnosis, I'm on heavy
>opioids to curb the never-ending horrific pain I'm in (plus have to work
>in pain), but sometimes that doesn't help.
>
>Now, Lupron was given to me as a diagnostic tool. My doctor referred me
>to a specialist 2 hrs away from here, and said that "she would like it
>if we tried this before visiting her". Lupron didn't work for my pain
>AT ALL, but it did give me all the horrible side-effects while I was on
>it, but the worst came after it started leaving my system, after 3
>months wore off. I now have permanently arthritic hands, can't even
>open a bottle of medicine for myself. I also have bone and joint pain
>every day, and sometimes can barely walk. I am afraid to go and get
>tested for osteoporosis, rheumatoid arthritis and all that, because I
>could not handle if the told me I have those things.
>
>So the bottom line is, I have no idea what stage of endo I'm in, cuz
>nobody wants to do this damn surgery. They are inventing diagnosis like
>"myofascial pain syndrome", "referred pain", and "chronic pelvic pain",
>just to milk as much money out of my insurance, while I'm BEGGING THEM
>TO DO A LAP!! And still they won't. I'm desolate.
>
>I could go on and on...but enough for now.
>
>Thanks for your help and I hope we'll chat more.
>
>Inny.
>
>*****************************************************
>Lupron & Endo Yahoo Group:
>
>--
>*****************************************************
>http://ca.groups.yahoo.com/group/LupronandEndoSupport/
>*****************************************************
>
>*****************************************************
>At Thu, 28 Sep 2006, Alpha wrote:
>>
>>At Thu, 28 Sep 2006, anonymous@obgyn.net wrote:
>>>
>>>I am wondering the same thing.
>>>
>>>My one and only 3-month shot was in May of this year.
>>>
>>>I had one full-blown period in June, not just some light bleeding, but
>>>the real thing (which is not supposed to happen on Lupron, but there you
>>>go).
>>>
>>>It's been 2 months now since Lupron has supposedly left my system, and
>>>no period yet.
>>>
>>>When?? When?? Why?? Why???
>>>
>>>All help or advice much appreciated??
>>>
>>>Inny.
>>>
>>>*****************************************************
>>>
>>>*****************************************************
>>>*****************************************************
>>>--
>>>*****************************************************
>>>Lupron & Endo Yahoo Group:
>>>*****************************************************
>>>
>>>http://ca.groups.yahoo.com/group/LupronandEndoSupport/
>>>
>>>*****************************************************
>>>
>>>*****************************************************
>>>*****************************************************
>>>*****************************************************
>>>Endo Sisterhood Yahoo Group:
>>>
>>>http://health.groups.yahoo.com/group/EndoSisterhood/
>>>
>>>*****************************************************
>>>
>>>*****************************************************
>>>*****************************************************
>>>*****************************************************
>>>At Wed, 27 Sep 2006, heather wrote:
>>>>
>>>>hi everyone. Im 21 years old and was diagnosed with endometriosis
>>>>through laparoscopy in may just 5 months after getting married. I
>>>>started taking Lupron depoI took the shot for four monhs. My last shot
>>>>was July 30th and I have not gotten my period back yet. At first I
>>>>thought well, maybe Im pregnant, but I don't really "feel" pregnant.
>>>>Does anyone know what may be causing my amenorrhea?
>>>
>>--
>>Hi Inny,
>> Within 1- 2 weeks of taking Lupron shot everyone will get a period,
>>but after that it stops. Since you said your 3 month shot was in May,
>>your period is not supposed to appear in the following months after the initial
>>period for 3 months minimum. But after the 3 months it really depends on your body,
>>some get it within 4 weeks, some take couple of months. I am in the same ship as you,
>>I had my 3 month shot in June & recently had a Lap, so now I am eagerly awaiting periods,
>>BTW did you have a Lap after your 3 month on lupron ? what stage of endo are you in ?
>>
>>Thanks,
>>will no
>>