ENDO Messages for September, 2006: Re: no period after lupron treatment complete

Re: no period after lupron treatment complete

From: anonymous@obgyn.net
Thu Sep 28 18:25:06 2006

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Hi Alpha,

I have all the symptoms of endo, and the doctors have been suspecting it for about 10 years, but I have only been in chronic pain for 1 year now. In that time I have found every door towards a laparoscopy closed to me. For some reason nobody wants to do it. I am in the pain management, doing everything I can, from acupuncture to hypnosis, I'm on heavy opioids to curb the never-ending horrific pain I'm in (plus have to work in pain), but sometimes that doesn't help.

Now, Lupron was given to me as a diagnostic tool. My doctor referred me to a specialist 2 hrs away from here, and said that "she would like it if we tried this before visiting her". Lupron didn't work for my pain AT ALL, but it did give me all the horrible side-effects while I was on it, but the worst came after it started leaving my system, after 3 months wore off. I now have permanently arthritic hands, can't even open a bottle of medicine for myself. I also have bone and joint pain every day, and sometimes can barely walk. I am afraid to go and get tested for osteoporosis, rheumatoid arthritis and all that, because I could not handle if the told me I have those things.

So the bottom line is, I have no idea what stage of endo I'm in, cuz nobody wants to do this damn surgery. They are inventing diagnosis like "myofascial pain syndrome", "referred pain", and "chronic pelvic pain", just to milk as much money out of my insurance, while I'm BEGGING THEM TO DO A LAP!! And still they won't. I'm desolate.

I could go on and on...but enough for now.

Thanks for your help and I hope we'll chat more.

Inny.

***************************************************** Lupron & Endo Yahoo Group: http://ca.groups.yahoo.com/group/LupronandEndoSupport/ *****************************************************

At Thu, 28 Sep 2006, Alpha wrote: >
>At Thu, 28 Sep 2006, anonymous@obgyn.net wrote:
>>
>>I am wondering the same thing.
>>
>>My one and only 3-month shot was in May of this year.
>>
>>I had one full-blown period in June, not just some light bleeding, but
>>the real thing (which is not supposed to happen on Lupron, but there you
>>go).
>>
>>It's been 2 months now since Lupron has supposedly left my system, and
>>no period yet.
>>
>>When?? When?? Why?? Why???
>>
>>All help or advice much appreciated??
>>
>>Inny.
>>
>>*****************************************************
>>
>>*****************************************************

>>--
>>*****************************************************
>>Lupron & Endo Yahoo Group:
>>*****************************************************

>>
>>http://ca.groups.yahoo.com/group/LupronandEndoSupport/
>>
>>*****************************************************
>>
>>*****************************************************

>>*****************************************************
>>Endo Sisterhood Yahoo Group:
>>
>>http://health.groups.yahoo.com/group/EndoSisterhood/
>>
>>*****************************************************
>>
>>*****************************************************

>>*****************************************************
>>At Wed, 27 Sep 2006, heather wrote:
>>>
>>>hi everyone. Im 21 years old and was diagnosed with endometriosis
>>>through laparoscopy in may just 5 months after getting married. I
>>>started taking Lupron depoI took the shot for four monhs. My last shot
>>>was July 30th and I have not gotten my period back yet. At first I
>>>thought well, maybe Im pregnant, but I don't really "feel" pregnant.
>>>Does anyone know what may be causing my amenorrhea?
>>
>--
>Hi Inny,
> Within 1- 2 weeks of taking Lupron shot everyone will get a period,
>but after that it stops. Since you said your 3 month shot was in May,
>your period is not supposed to appear in the following months after the initial
>period for 3 months minimum. But after the 3 months it really depends on your body,
>some get it within 4 weeks, some take couple of months. I am in the same ship as you,
>I had my 3 month shot in June & recently had a Lap, so now I am eagerly awaiting periods,
>BTW did you have a Lap after your 3 month on lupron ? what stage of endo are you in ?
>
>Thanks,
>will no
>

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