ENDO Messages for September, 2006: Re: norethindrone

Re: norethindrone

From: Mindy (anonymous@obgyn.net)
Thu Sep 28 12:10:51 2006

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: heather: "Re: endometriosis?"
Previous message: liz: "endometriosis?"
In reply to: Meredith: "Re: norethindrone"

Hi Amber I have been on Aygestin for about 8 months now. My doc put me on it to help with the break through bleeding I was having when I was on continous birth control. I started out only taking 2.5mg a day & now I'm up to 10mg a day. They upped my dose because I was still having some bleeding occassionally & also to see if it would help control the endo pain. About the only side effect that I noticed was the weight gain. I've gained about 20 pounds in 6 months, but this could also be because of my bc pills. I'm also on Seasonal. My doc is taking my off my bc pills cause I started Lupron on Monday. I will probably still take the Aygestin as addback for the hot flashes from the Lupron. Hope this helps a bit, but I would still recommend seeing a specialist! Take Care, Mindy Jo At Wed, 27 Sep 2006, Meredith wrote: >
>At Wed, 27 Sep 2006, Kisha wrote:
>>
>>Amber,
>>I am new to the forum, but when I saw that you just started on Aygestin
>>I had to put my two cents in. I was on Aygestin for 3 months. I
>>started out on 5 mg, a day. It did not help with the endo-related pain!
>>I had nausea, terrible mood swings, trouble sleeping, some hair loss,
>>and little muscle spasms in different parts of my body. I am surprised
>>that you would be prescribed Aygestin since you have a history of a
>>blood clot and Aygestin increases risk of blood clots/stroke. I don't,
>>but at one point while on the drug I experienced loss of function on my
>>left side, and I am convinced that it had something to do with the
>>Aygestin, although the episode was brief, it was very frightening
>>(especially because I was home alone at the time). So please be careful
>>with that. Anyway, after two months on Aygestin, I went to the ER due
>>to a severe episode of pelvic pain, at which time my dosage was
>>increased to 10 mg per day. It still didn't help with the pain and I
>>opted to stop taking it. I quit taking it two weeks ago, and already my
>>mood swings have stopped, I haven't been nauseous (except during my
>>period which returned four days after I stopped. But I am always
>>nauseous during my period) and no more pulling clumps of hair out in the
>>shower! Plus the muscle spasms are way less frequent, they're not gone
>>yet, but I suspect it will take a little time for all the Aygestin to
>>get out of my system. Sorry this is kinda long but I wanted to share my
>>experience. I am looking for an endo specialist as well, best of luck
>>to you in finding a great surgeon!
>>Kisha
>>
>>At Wed, 27 Sep 2006, Alyson wrote:
>>>
>>>Amber,
>>>I was on norethindrone (generic for Aygestin) for about 8 months. At
>>>first I was taking 5mg once daily, then 5 mg twice daily. I had a few
>>>side effects initially, mostly just moodiness. The drug was not working
>>>very well to diminish my pain and so the doc doubled the dose (to 5 mg
>>>2x daily) and that was when I started having problems with it. I was
>>>having terrible night sweats, hot flashes, losing my hair (which is
>>>still happening months after stopping it, so I can't say for sure that
>>>the drug was th cause). I finally switched to Danazol because the
>>>norethindrone wasn't helping and I was having so many problems with it.
>>>I must say that I also had a hard time on Danazol and am now not taking
>>>anything.
>>>I would encourage you to seek that specialist! It may be a battle, but
>>>probably worth it in the end.
>>>Alyson
>>>
>>>At Wed, 27 Sep 2006, Amber wrote:
>>>>
>>>>Can anyone tell me about your experiences with this drug? I started this
>>>>last night to stop my periods. I saw a GYN specialist yesterday and
>>>>after doing ultrasounds she said the scar tissue and the lining in my
>>>>uterus was way too thick and my periods needed to be stopped ASAP. I am
>>>>not supposed to take any estrogen based hormones (due to prior blood
>>>>clot). But she said this one would be safe. Please let me know
>>>>anything about this drug. She also said she would not be able to
>>>>perform laparscpoic exicison on my because of the bladder and ureters
>>>>being involved and I would really need treatment with a highly skilled
>>>>endo specialist......so now the insurance battle begins! Thank you
>
>--
>Just began Norethedrone. Had my first lap 4 weeks ago and have been on the drug since.
>Being on for only a few weeks I am not sure of the side effects, but I have been much moodier
>and have had acne - which I haven't had in years. I'm still trying to figure out
>if my depression over my doc deciding on a hysto is the only option is from the news or from
>the effects of the drugs?????? Please keep us posted on your experience and I will on mine!
>

Next message: heather: "Re: endometriosis?"
Previous message: liz: "endometriosis?"
In reply to: Meredith: "Re: norethindrone"

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: