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Re: norethindroneFrom: Meredith (anonymous@obgyn.net)Wed Sep 27 22:12:24 2006
At Wed, 27 Sep 2006, Kisha wrote: > >Amber, >I am new to the forum, but when I saw that you just started on Aygestin >I had to put my two cents in. I was on Aygestin for 3 months. I >started out on 5 mg, a day. It did not help with the endo-related pain! >I had nausea, terrible mood swings, trouble sleeping, some hair loss, >and little muscle spasms in different parts of my body. I am surprised >that you would be prescribed Aygestin since you have a history of a >blood clot and Aygestin increases risk of blood clots/stroke. I don't, >but at one point while on the drug I experienced loss of function on my >left side, and I am convinced that it had something to do with the >Aygestin, although the episode was brief, it was very frightening >(especially because I was home alone at the time). So please be careful >with that. Anyway, after two months on Aygestin, I went to the ER due >to a severe episode of pelvic pain, at which time my dosage was >increased to 10 mg per day. It still didn't help with the pain and I >opted to stop taking it. I quit taking it two weeks ago, and already my >mood swings have stopped, I haven't been nauseous (except during my >period which returned four days after I stopped. But I am always >nauseous during my period) and no more pulling clumps of hair out in the >shower! Plus the muscle spasms are way less frequent, they're not gone >yet, but I suspect it will take a little time for all the Aygestin to >get out of my system. Sorry this is kinda long but I wanted to share my >experience. I am looking for an endo specialist as well, best of luck >to you in finding a great surgeon! >Kisha > >At Wed, 27 Sep 2006, Alyson wrote: >> >>Amber, >>I was on norethindrone (generic for Aygestin) for about 8 months. At >>first I was taking 5mg once daily, then 5 mg twice daily. I had a few >>side effects initially, mostly just moodiness. The drug was not working >>very well to diminish my pain and so the doc doubled the dose (to 5 mg >>2x daily) and that was when I started having problems with it. I was >>having terrible night sweats, hot flashes, losing my hair (which is >>still happening months after stopping it, so I can't say for sure that >>the drug was th cause). I finally switched to Danazol because the >>norethindrone wasn't helping and I was having so many problems with it. >>I must say that I also had a hard time on Danazol and am now not taking >>anything. >>I would encourage you to seek that specialist! It may be a battle, but >>probably worth it in the end. >>Alyson >> >>At Wed, 27 Sep 2006, Amber wrote: >>> >>>Can anyone tell me about your experiences with this drug? I started this >>>last night to stop my periods. I saw a GYN specialist yesterday and >>>after doing ultrasounds she said the scar tissue and the lining in my >>>uterus was way too thick and my periods needed to be stopped ASAP. I am >>>not supposed to take any estrogen based hormones (due to prior blood >>>clot). But she said this one would be safe. Please let me know >>>anything about this drug. She also said she would not be able to >>>perform laparscpoic exicison on my because of the bladder and ureters >>>being involved and I would really need treatment with a highly skilled >>>endo specialist......so now the insurance battle begins! Thank you
-- Just began Norethedrone. Had my first lap 4 weeks ago and have been on the drug since. Being on for only a few weeks I am not sure of the side effects, but I have been much moodier and have had acne - which I haven't had in years. I'm still trying to figure out if my depression over my doc deciding on a hysto is the only option is from the news or from the effects of the drugs?????? Please keep us posted on your experience and I will on mine!
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