Re: Sciatic Endometriosis (hip, leg pain) - Anyone have it...Anyone been treated properly for it?
From: anonymous@obgyn.net
Tue Sep 26 11:54:48 2006
I agree. I see that someone earlier was thinking of starting a forum
for this topic. I think that would be awesome. Me and my rolling pin.
oooh.. I have had to use it to roll out the pain under the right
buttock by trying to hold myself ontop of it and set myself down slowly
and roll back and forth a few times. It seems to stretch those tendons
when it gets so bad. The other day it was hurting in the arch of my
foot and heal so I sat on the couch and let my foot roll back over it.
Please note: My rolling pin is not wooden for splinters (ha ha) or it is
not used to cook with anymore. Hubby purchased another :) It's the
goofiest of things to do for an impromptu physical therapy at the moment
when pain get's so high.
Who ever starts a group, I would be happy to join. Thanks for bringing
this subject to the front of the topics.
Have a good day!
Elisa
At Tue, 26 Sep 2006, J wrote:
>
>I've also been diagnosed with sciatic endometriosis. Its the worst pain
>that I've ever experienced in my life. I get back/buttocks pain which
>radiates to my leg (Rt). I now have chronic right great toe numbness
>due to this. Its a horrible pain and only folks who Have experienced
>this type of excruciating nerve pain can relate. I tend to get this few
>days before my menses and its worst when I bleed heavy. We certainly
>need some awareness for this type of endo. Its hard to find information
>and support on this
>Thanks
>
>At Fri, 22 Sep 2006, Jenn wrote:
>>
>>I havent been diagnosed with this type I had a little removed almost
>>2months ago and that is when I started to have this symptom but I dont
>>get it constantly it comes and goes but when it comes I loose control of
>>my leg and about fall over in pain. For me it feels like a knife sharp
>>pain. I usually get sharp pains in my lower pelvic when I get the leg
>>pain to it is only in my thigh I think that only once it went all the
>>way down to my foot. Lately I have been getting a feeling as if someone
>>is taking needles to my uterus. My back seems to be finally not hurting
>>near as much since surgery but my DR had given me something for cramps
>>and since I started that 2days ago my back pain hasnt been as bad. I
>>dont know if it is the drugs or just me healing since surgery. I am
>>still waiting for my approval on my MRI. 2wks and counting I have
>>little patience with tricare but I just cant afford to pay for the
>>standard right now.
>>Jenn
>>
>> At Fri, 22 Sep 2006, Angela wrote:
>>>
>>>Hiya all.
>>>
>>>I am looking for people who suffer with hip and leg pain related to
>>>endo, or suspected to be related to endo.
>>>
>>>It is my very worst symptom and has ruined much of the last decade of my
>>>life.
>>>
>>>I would like to start a mini internet support group just for women with
>>>that symptom. Its important because there isn't much info around on it
>>>and also alot of GPs and GYNs dont know anything about it. I would like
>>>to gang up and compare notes, discover things about it and develop some
>>>support material in the form of printouts, for sufferers and for
>>>doctors.
>>>
>>>If you have had this symptom and would like to chat for support and also
>>>become a gang in the hopes of raising awareness of this form of endo,
>>>please contact me. I am sure there are others out there who suffer as
>>>badly as me with this condition and who may have hit brick walls with
>>>treatment like I have.
>>>
>>>This cant go on...I dont want my daughters facing the same helplessness
>>>as me if they are unlucky enough to get endo too.
>>>
>>>Hugs All
>>>
>>>--
>>>Angela
>>>
>>>angelabishop79@hotmail.com or
>>>merseymay@bigpond.com.au
>>>
>>>--
>>>Angela
>>>long time endo survivor
>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)