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Re: Sciatic Endometriosis (hip, leg pain) - Anyone have it...Anyone been treated properly for it?
From: J (anonymous@obgyn.net)
Tue Sep 26 07:58:02 2006
I've also been diagnosed with sciatic endometriosis. Its the worst pain
that I've ever experienced in my life. I get back/buttocks pain which
radiates to my leg (Rt). I now have chronic right great toe numbness
due to this. Its a horrible pain and only folks who Have experienced
this type of excruciating nerve pain can relate. I tend to get this few
days before my menses and its worst when I bleed heavy. We certainly
need some awareness for this type of endo. Its hard to find information
and support on this
Thanks
At Fri, 22 Sep 2006, Jenn wrote:
>
>I havent been diagnosed with this type I had a little removed almost
>2months ago and that is when I started to have this symptom but I dont
>get it constantly it comes and goes but when it comes I loose control of
>my leg and about fall over in pain. For me it feels like a knife sharp
>pain. I usually get sharp pains in my lower pelvic when I get the leg
>pain to it is only in my thigh I think that only once it went all the
>way down to my foot. Lately I have been getting a feeling as if someone
>is taking needles to my uterus. My back seems to be finally not hurting
>near as much since surgery but my DR had given me something for cramps
>and since I started that 2days ago my back pain hasnt been as bad. I
>dont know if it is the drugs or just me healing since surgery. I am
>still waiting for my approval on my MRI. 2wks and counting I have
>little patience with tricare but I just cant afford to pay for the
>standard right now.
>Jenn
>
> At Fri, 22 Sep 2006, Angela wrote:
>>
>>Hiya all.
>>
>>I am looking for people who suffer with hip and leg pain related to
>>endo, or suspected to be related to endo.
>>
>>It is my very worst symptom and has ruined much of the last decade of my
>>life.
>>
>>I would like to start a mini internet support group just for women with
>>that symptom. Its important because there isn't much info around on it
>>and also alot of GPs and GYNs dont know anything about it. I would like
>>to gang up and compare notes, discover things about it and develop some
>>support material in the form of printouts, for sufferers and for
>>doctors.
>>
>>If you have had this symptom and would like to chat for support and also
>>become a gang in the hopes of raising awareness of this form of endo,
>>please contact me. I am sure there are others out there who suffer as
>>badly as me with this condition and who may have hit brick walls with
>>treatment like I have.
>>
>>This cant go on...I dont want my daughters facing the same helplessness
>>as me if they are unlucky enough to get endo too.
>>
>>Hugs All
>>
>>--
>>Angela
>>
>>angelabishop79@hotmail.com or
>>merseymay@bigpond.com.au
>>
>>--
>>Angela
>>long time endo survivor
>>
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