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Re: I'm not quite sure if I have endo or not....advice would be appreciated

From: Julie (anonymous@obgyn.net)
Mon Sep 25 09:10:32 2006


At Mon, 25 Sep 2006, Laura wrote: >
>Hello ladies,
>I hope you don't mind if I quickly run through my situation, because
>although I am in a lot of pain lately, I'm not sure if I have endo or
>not so I'm not sure what to do about it.
>
>About 3 years ago I was having really awful spasms in my rectum during
>my periods. At first the problem was aggravated by using tampons, and
>when I stopped using them it went away, but after a few months the pain
>got worse again without tampons. I went to my doctor and he gave me
>Vioxx, which helped a bit but not much. After a bit of research online
>I thought maybe I had endo, so I went back to my doctor and he suggested
>a laparascopy. I agreed.
>
>The lap showed nothing, or at least my doctor found nothing. After the
>surgery I was in really bad pain, because it was time for my period, but
>when I went back to my doctor to get my stitches removed he yelled at me
>that it's impossible to have pain because he had scraped the inside of
>my uterus, so how can I have a period? I asked him then what could be
>causing the pain if it's not endo and obviously he didn't know because
>he just yelled at me some more until I cried.
>
>Needless to say I never went back to that doctor. I wouldn't have even
>if he hadn't treated me like that, since he left huge awful scars from
>the lap.
>
>So I continued to live in pain, not sure what was wrong with me. About
>4 months after the lap (this was early 2004) I got pregnant. For the
>duration of my pregnancy, I had no pain. This reinforced in my mind
>that I must have had endo and not some other, non-gynelogical problem
>with my bowels.
>
>After my pregnancy however, with my postnatal bleeding, the pain came
>back with a vengeance. I talked to my new doctor (a female) about it,
>and she said she couldn't think of anything else that could cause the
>pain but endo, my other doctor must have missed it. She prescribed
>Yasmin bcp which I was on for a year. These pills helped a lot, I had
>almost no pain for the time I was on them and my periods got much
>lighter.
>
>However when my prescription ran out, I didn't get more because my
>husband was (and still is!) out of work and we didn't have the money to
>pay for them. I thought maybe I'll be fine. Well, I was wrong. Over
>the last few months the pain has gotten worse every period, and my
>periods have become much heavier too.
>
>Yesterday the pain was very severe. But this is why I'm not sure if
>it's endo or not: The pain I experience isn't exactly pain, but more
>like really painful muscle spasms. The muscles in my rectum spasm, and
>now the muscles all across the bottom of my abdomen spasm at the same
>time too. It's a very strong spasm that lasts for maybe 15 seconds--it
>can be brought on by various things, bending over, moving too fast,
>having to go to the bathroom. The only way I can control the spasms at
>all is by deep breathing like the kind used in childbirth.
>
>Is this kind of painful spasm consistent with endometriosis? Or might I
>have some other kind of condition? I don't usually have these spasms
>when I'm not on my period (although sometimes I do). They mostly only
>happen during my period, they are very painful, but yet I don't have
>very bad menstrual cramps, I know what those are and this is much
>different.
>
>All the info I can find on the Internet just says endo causes pain, it
>doesn't specify what kind of pain, hence my confusion.
>
>Any advice you could give me would be greatly appreciated. Thank you.
>Laura





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