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I'm not quite sure if I have endo or not....advice would be appreciatedFrom: Laura (anonymous@obgyn.net)Mon Sep 25 08:23:23 2006
Hello ladies, I hope you don't mind if I quickly run through my situation, because although I am in a lot of pain lately, I'm not sure if I have endo or not so I'm not sure what to do about it. About 3 years ago I was having really awful spasms in my rectum during my periods. At first the problem was aggravated by using tampons, and when I stopped using them it went away, but after a few months the pain got worse again without tampons. I went to my doctor and he gave me Vioxx, which helped a bit but not much. After a bit of research online I thought maybe I had endo, so I went back to my doctor and he suggested a laparascopy. I agreed. The lap showed nothing, or at least my doctor found nothing. After the surgery I was in really bad pain, because it was time for my period, but when I went back to my doctor to get my stitches removed he yelled at me that it's impossible to have pain because he had scraped the inside of my uterus, so how can I have a period? I asked him then what could be causing the pain if it's not endo and obviously he didn't know because he just yelled at me some more until I cried. Needless to say I never went back to that doctor. I wouldn't have even if he hadn't treated me like that, since he left huge awful scars from the lap. So I continued to live in pain, not sure what was wrong with me. About 4 months after the lap (this was early 2004) I got pregnant. For the duration of my pregnancy, I had no pain. This reinforced in my mind that I must have had endo and not some other, non-gynelogical problem with my bowels. After my pregnancy however, with my postnatal bleeding, the pain came back with a vengeance. I talked to my new doctor (a female) about it, and she said she couldn't think of anything else that could cause the pain but endo, my other doctor must have missed it. She prescribed Yasmin bcp which I was on for a year. These pills helped a lot, I had almost no pain for the time I was on them and my periods got much lighter. However when my prescription ran out, I didn't get more because my husband was (and still is!) out of work and we didn't have the money to pay for them. I thought maybe I'll be fine. Well, I was wrong. Over the last few months the pain has gotten worse every period, and my periods have become much heavier too. Yesterday the pain was very severe. But this is why I'm not sure if it's endo or not: The pain I experience isn't exactly pain, but more like really painful muscle spasms. The muscles in my rectum spasm, and now the muscles all across the bottom of my abdomen spasm at the same time too. It's a very strong spasm that lasts for maybe 15 seconds--it can be brought on by various things, bending over, moving too fast, having to go to the bathroom. The only way I can control the spasms at all is by deep breathing like the kind used in childbirth. Is this kind of painful spasm consistent with endometriosis? Or might I have some other kind of condition? I don't usually have these spasms when I'm not on my period (although sometimes I do). They mostly only happen during my period, they are very painful, but yet I don't have very bad menstrual cramps, I know what those are and this is much different. All the info I can find on the Internet just says endo causes pain, it doesn't specify what kind of pain, hence my confusion. Any advice you could give me would be greatly appreciated. Thank you. Laura
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