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Re: Lupron a nightmare? YES for me. Other things to try.From: anonymous@obgyn.netFri Sep 15 18:31:08 2006
Hi Aimee, Lupron WAS a nightmare for me. I was given it as a diagnositic when I couldn't tolerate BC pills. NOTE: If your are allergic to BC pills, you will be allergic to Hormone Replacement Therapy too, leaving you with no relief from the menapausal symtoms and a much higher risk of bone and memory loss and insomnia, not to mention frequent hot flashes and night sweats. Lupron can also make you feel weak and tired. I was also given 7.5 mg injections (normal is 3.75 mg) "b/c it is cheaper and won't do any harm since the goal is to outcompete your own GnRH and shut off your ovaries." Whatever you decide, only do the 3.75 mg injections and don't get the second one if you can't sleep or tolerate the other side effects after the first one, or the thrid one if the side effects got bad in the second month. According to what I can find, It will take 6-8 weeks for you to have a normal period after your last month is up. I must say, I am pissed to have been put on Lupron without a surgical diagnosis. If this is your situation, find the ERC's article on why using GnRH agonists as diagnostic tools is wrong. (Surgery for diagnosis, or treatment, is a shorter recovery than these drugs.) (or email me and I'll fwd it to you) Furthermore, Lupron is just a bandaid. You can use it for only 6 months, and maybe another 6 months, but only if your are on HRT and that's it for your lifetime. Obviously the FDA is worried about this drug. Read "What your doctor doesn't tell you about Lupron Depot" at http://www.associatedcontent.com/article/48852/what_your_doctor_doesnt_tell_you_aboutlupron.html I don't know where you are in this journey. Excision surgery seems to have an 80% success rate if you define that by non-recurrance of pain for 5 years (it also usually restores fertility). But that still leaves one in five women suffering. Lots of women have reported considerable relief by avoiding food allergens, changing diet (adding good fats like evening primrose oil), and accupuncture. Treating yeast allergies and infestations has had a lot of success according to the Endo Assn's polling. Another approach I've heard good things about is to look for estrogen dominance (google it) and, if present, treat it. I strongly suggest reading http://www.endo-resolved.com Farther out, I've also read about hormone allergy desensitation and the Resan vaccine (total cost $770 Euro...it's really not used here, but seems worth investigation to me, I've emailed the company that makes it). The only other thing I can say, is that reading lots of posts I think I see a bit of a trend that Lupron is tolerated better by older women >30 or 40. If you've tried everything else, then maybe. But it's just a bandaid, one with high costs in terms of health and money. I'm sorry, I just don't understand why the doctors push this drug so much and don't help us investigate other options. I wish you the best with your decision and your search for relief. Jenn
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