ENDO Messages for September, 2006: Re: adenomyosis and hysterectomy

Re: adenomyosis and hysterectomy

From: Wendy (anonymous@obgyn.net)
Fri Sep 15 06:04:48 2006

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Hi Jenn:

Since you've been lucky enough to have kids, then I don't see any reason why you should go through it any longer. But that's my opinion. Yes, 28 is young, but so was 35. Extreme cases require extreme measures (that sounded like a movie line, didn't it?) Your doc is trying to balance your future health, the risks of HRT, and all that is involved in the hysterectomy against your current pain. But you need relief somehow! If he thinks he can surgically treat it without removing anything, maybe that's his preferred approach. From what I've read, unless it's isolated and distinct, surgery without removal might be tough. I don't know if you've already tried hormonal treatment, but if you have and that hasn't worked, I'd say some form of surgery is your only choice. There is that relatively new surgery, too, where they put a heated balloon-type object in the uterus (can't remember what it's called), and maybe you'd be a candidate for that as well. But it sounds like you're way beyond a wait-and-see approach. My fear is that abscess or hemorrhage might become a problem.

This is the stuff I would talk to your doc about. Indeed, there are risks for heart disease, high blood pressure, and other problems with hysterectomy. And docs have heard so much bad press about HRT that they feel guilty putting a young woman on it unless they are old school, like my doc was. My best advice is to pin him down. Your argument, should you choose to stay with this doc, is that living on pain medication and the inevitable effects on your digestive system are just as dangerous as a young age at hysterectomy (believe me, I know of whence I speak). If you feel like you're not getting anywhere with this doc, tell him that, too. If I've learned one thing from these diseases, it's that docs are human too, and that you're ultimately in charge of getting your body the treatment it needs. If that means getting another doc because this one is adamant about not doing a hysterectomy, then so be it.

At Fri, 15 Sep 2006, Jenn wrote: >
>I just turned 28 on Sept 13 and I already have my kids Im done in that
>department. My pain is getting so intense I honestly would rather have
>10csections instead of this pain. The DR I have like I said is against
>removing anything at this age. I mean what age is good? I am just
>curious on my options I guess. I know that I dont want to end up having
>7surgies.
>Jenn
>
>At Thu, 14 Sep 2006, Wendy wrote:
>>
>>Hi Jenn:
>>
>>I had adenomyosis, which was discovered at the time of my hysterectomy.
>>I had terrible pain, heavy bleeding and swelling until the hyst, but all
>>of the symptoms completely disappeared after it was done. The endo
>>alone would have been enough for me to do the hyst, but after finding
>>out that I had adenomyosis too, I was even more grateful to have it all
>>taken out. I should probably mention that I had both pre-sacral and
>>uterosacral neurectomies during prior surgeries, so you can imagine that
>>if I was feeling that kind of pain that it was pretty darned bad!
>>
>>I don't regret the hyst for a second, even with the hormones and
>>surgical menopause. I was lucky enough to have three children first,
>>and I don't know what your situation is. I had three pain free years
>>until the adhesions started getting bad. I have a tendency to develop
>>dense scar tissue and knew it was a risk associated with having the
>>surgery, but I was in so much pain that I just didn't care. Your own
>>predisposition towards dense adhesions is also a factor to consider. I
>>hope this helps.
>>
>>At Thu, 14 Sep 2006, Jenn wrote:
>>>
>>>I was wondering if anyone has had a hysterectomy to help them with their
>>>adenomyosis? If so did it stop the pain?
>>>Jenn

Next message: Amber: "Re: Pain has returned"
Previous message: Rosey: "Does endo cause rectocele?"
In reply to: Jenn: "Re: adenomyosis and hysterectomy"
Next in thread: lisa: "Re: adenomyosis and hysterectomy"

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