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Re: Pregnancy and endometriosis
From: Alyson (anonymous@obgyn.net)
Thu Sep 7 08:32:20 2006
Em,
I have absolutely no experience with endo and pregnancy...
That said, I was just discussing my adhesion issues with the doctor. She
suggested that I see a chiropractor who has a massage therapist
specializing in abdominal/pelvic pain. Essentially it would involve
deep tissue massage to release the adhesions. She did say it is very
painful during the session, but usually provides alot of relief once
complete. Obviously you would want to discuss this with your doctor. I
have no idea if it is something that would be safe for you and the baby.
I just thought it might be something to look into if it could possibly
help.
Congratulations on your pregnancy!
Alyson
At Thu, 7 Sep 2006, Em wrote:
>
>Hi, Just wondered if anybody had any advice or support to offer????
>I am 23 and have suffered with endometriosis for many years, with severe
>pain and problems with my periods. I had my last lap in Dec 2005 after
>the lap.
>My partner and i were told that although we were trying for a baby we
>would not suceed. We were both devastated and were going to commence
>IVF treatment.
>My periods were so irregular with bleeding occuring on most days.
>At the end of FEB 2006 I was told by my GP that I was pregnant it was
>unbelievable as I was still bleeding a little everyday. We were over
>the moon about being pregnant.
>We were checked over at the hospital and all was well. The bleeding
>slowly subsided.
>At 25 weeks pregnant the nightmare began. I started a few days earlier
>niggling back ache but just thought it must of been normal. Within a
>few days the pain was excruitating I went to the hospital and they
>admitted me thinkin I had damaged my back I told the doctors I had a
>history of endo but they did not seemed concerned.
>After 4 days in hospital my legs went from underneath me and the pain
>was un bearable I was fearful for myself and the baby.
>I was sent for an urgent MRI (that was not a nice experience). The
>results came back that my spine was ok but they were unhappy with
>something within my pelvic region.
>After seeing specialists at numeral hospitals and still being unable to
>walk and constantly screaming with pain my partner requested to see the
>senior doctor.
>He explained that there were numerous large areas within the sacral
>pelvic area that were abnormal and they need to do various
>investigations they needed to rule out cancer etc... My partner
>reminded them of my endo.
>After ruling out cancer two specialists asked for a repeat MRI scan they
>decided that the back pain and nerve pain is being caused by my
>adhesions pulling and tearing with the growth of the uterus causing
>inflammation and nerve pain within my back and legs.
>There is no cure for this until after the baby is born other than to
>continue with analgesia. They gave me an epidural for 3 days to numb
>the pain as I was exhausted and to try and break the nerve pain.
>I am now 31 weeks pregnant and have just come home and being seen by the
>hospital every week. I can still only walk a few steps due to weakness
>in legs and severe pain. I am resticted to a wheelchair and can only
>tolerate that for short periods.
>I feel emotionally so low. I am so grateful I am pregnant and feel
>blessed, but this continual severe pain and been so immobile is hard to
>deal with.
>The doctors want to induced the baby at 37 wks when she will b strong
>enough. The doctors are hoping the pain will settle down when the
>uterus shrinks post birth but I am terrified of what the future will
>hold and want to be able to be a good mum and enjoy my daughter.
>If anyone has any advice or support it would b much appreciated.
>Thanks Em x
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