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Re: Anyone ever heard of, or had a presacral neurectomy?

From: Wendy (anonymous@obgyn.net)
Tue Sep 5 08:10:56 2006


Hi Emma:

I've had a presacral neurectomy. I had it during my very first surgery. It does help with the pain right down the vertical middle of your lower abdomen. I didn't have any problems at all with the loss of sensation mentioned here. It was higher up than that. I also had a uterosacral neurectomy, which helped even more, during my second surgery. Of course now, there's no uterus to cause pain for me, but I hope this helps.

At Sun, 3 Sep 2006, Emma wrote: >
>Hi everyone, I am new to the forums. I've been suffering from endo
>probably since I was 13, but I had my first surgery at age 20 to
>diagnose it, and I am 27 now. Since the first surgery I've had 3 others
>to cauterize the endo and to remove 2 cysts.
>
>So, apparently a presacral neurectomy is a procedure to lessen the pain
>of endometriosis when other procedures (laparoscopies) have failed to
>prevent it from coming back, and when you are not quite ready to have a
>full-blown hysterectomy (I would like to try to have kids in a couple
>years, although now it is looking like we should try sooner than later).
>I am tired of the pain, but also tired of having surgery (this would be
>my fifth one for endo). I've already been on Lupron twice, and I cannot
>be on it again because of the risk for osteoporosis, and I cannot be on
>the Pill (at least one with estrogen) continuously because of severe
>migraines. Good times, and I am sure you can all relate!
>
>Anyway, does anyone know anything about this procedure? I have a
>consultation sometime in the next couple of weeks to learn more about
>the procedure with a surgeon, but thought I'd try to research it a bit
>first.
>
>Thanks in advance!
>
>Emma




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