ENDO Messages for September, 2006: Re: Anyone ever heard of, or had a presacral neurectomy?

Re: Anyone ever heard of, or had a presacral neurectomy?

From: Alyson (anonymous@obgyn.net)
Mon Sep 4 10:15:27 2006

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In reply to: Emma: "Anyone ever heard of, or had a presacral neurectomy?"
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Emma, I had a pre sacral neurectomy during my last laproscopy. As it was explained to me, the purpose was to relieve some of the intense back pain caused by the endo, especially if you have endo on your sacral ligament. I would caution you not to expect the proceedure to relieve your pelvic pain. The pre sacral neurectomy involves cutting the nerves in the sacral ligament that lead to the back. So, it doesn't really affect any pain being caused by adhesions, endo on your uterus, ovaries, tubes, or abdominal cavity. It did help my back pain. I just don't know that I would go through surgery to have that one proceedure done. Another thing that I wanted to mention is that you said you have had multiple surgeries during which your endo was cauterized. You may want to check into a more effective method of removal. It has been suggested that cauterization is the least effective method for removing endometriosis. Essentially all it does is burn off the top of the implant. It does not remove the part of the implant that has grown into the tissues. Think of it as leaving a root behind to regrow. There is another more effective method called laser ablation that is able to better get into the tissue. But probably the most effective is excision surgery. You usually have to find a very experienced surgeon to do this, or even an endo specialist. It involves actually cutting the implant out with either a laser or scalpel. There are various stats that I've seen about the results of the surgery, one actually claims a 90% success rate without recurrence. I have had both cauterization and laser ablation and it did not slow my endo down either. You may want to look at the Center For Endometriosis Care, specifically Dr. Albee. There are several more specialists that perform the surgery, but I think his web site is really helpful for answering questions or just learning more about it. So, that is just something to think about. Alyson

At Sun, 3 Sep 2006, Emma wrote: >
>Hi everyone, I am new to the forums. I've been suffering from endo
>probably since I was 13, but I had my first surgery at age 20 to
>diagnose it, and I am 27 now. Since the first surgery I've had 3 others
>to cauterize the endo and to remove 2 cysts.
>
>So, apparently a presacral neurectomy is a procedure to lessen the pain
>of endometriosis when other procedures (laparoscopies) have failed to
>prevent it from coming back, and when you are not quite ready to have a
>full-blown hysterectomy (I would like to try to have kids in a couple
>years, although now it is looking like we should try sooner than later).
>I am tired of the pain, but also tired of having surgery (this would be
>my fifth one for endo). I've already been on Lupron twice, and I cannot
>be on it again because of the risk for osteoporosis, and I cannot be on
>the Pill (at least one with estrogen) continuously because of severe
>migraines. Good times, and I am sure you can all relate!
>
>Anyway, does anyone know anything about this procedure? I have a
>consultation sometime in the next couple of weeks to learn more about
>the procedure with a surgeon, but thought I'd try to research it a bit
>first.
>
>Thanks in advance!
>
>Emma

Next message: Alyson: "Re: Need to find Endo Specialist in Texas (or great Endo Gyn)"
Previous message: Elisa: "Re: Feeling Alone"
In reply to: Emma: "Anyone ever heard of, or had a presacral neurectomy?"
Next in thread: Wendy: "Re: Anyone ever heard of, or had a presacral neurectomy?"

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