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Re: Endo on cervix?
From: Alyson (anonymous@obgyn.net)
Thu Aug 31 10:19:28 2006
Maya,
I am sorry that you have been through so much without any answers. I
think many of us have found that we have to go to great lengths to get a
diagnosis for this disease.
It is important to know that your pain level does not necessarily
correspond to the extent of your endometriosis. Many women have very
mild endo, but excrutiating pain. Like wise, many women do not exhibit
any symptoms and only find out when other issues arrise.
I don't know how "common" it is to have endo on your cervix, but you can
have endo there, your vagina, bladder, bowels, in rare cases skin and
lungs, and of course your reproductive organs.
I am wondering if it would be possible for your doctor to biopsy the
lesions on your cervix. (don't let the word biopsy scare you, it is
basically just a tissue sample taken and looked at to confirm the type
of lesion) Many doctors will perform the proceedure during a laproscopy
to confirm the presence of endo. That may be a good way for you to get
confirmation of the diagnosis without having to have an invasive
surgery. Just a thought.
As for treatment alternatives, I have relied on acupuncture and am now
using natural progesterone cream and a modified diet.
go to http://www.endo-resolved.com
There is a good amount of info on the disease as well as alternative
treatment methods.
Alyson
At Thu, 31 Aug 2006, Maya wrote:
>
>Hi,
>
>During my annual Pap end of last year, my gynae asked me if I had
>painful periods. (Yes I do)
>
>He told me that he had felt bumps, like matchstick heads on my cervix
>while doing manual exam. He said it is likely endometriosis. This is
>the first time ever, that any doctor came close to acknowledging that I
>have endo. I am 28, and my periods became 'strange and more painful in
>an unusual way' when I turned 18.
>
>I turned to medical books and surfing the net based on the symptoms that
>I had and the search kept leading me to endometriosis.
>
>WHile I do have pain, it is not severe like what doctors tell me when I
>broached the possibility of it being endo.The pain is and was constant,
>dull, at the 'sides' and can last from 1st day to 5th day of my
>period.When I clear my bowels, there is a sharp pain. I get bloated and
>gassy as soon as my periods start.
>
>I had mid cycle spotting on and off since I was 16. Pain during sex,
>especially on certain positions.
>
>Was I ever 'officially' diagnosed? NO.
>
>So when the gynae actually said the words 'endo' to me last year, I
>couldn't help feeling angry at all the doctors who told me to take
>painkillers and that I would not have period pains once I had kids.
>
>I live and grew up in SouthEast Asia.Medical care here might not be as
>extensive as in the US or other western countries. Plus we do not have
>medical insurance system, so most of us pay per visit or per procedure,
>which can be very expensive.
>
>As a result, I have had 10 years fly past me without ANY treatment for
>my endometriosis. No birthcontrol pills, no disgnostic procedure (they
>say its too expensive, accomplishes nothing because even if it is endo,
>treatments are severe and not worth it, lap requires general anesthesia,
>risk benefit ratio etc)
>
>Anyway, while my docs still insist that my probems aren't severe enough
>for surgery, except when I experience infertility (not tried to conceive
>before), I have begun to develop vague, strange aches in my pelvic area
>a few days before my period comes. This has never happened before.
>Also, I have had bleeding after sex a few times in the past months.
>These cnvinces me that my endo is becoming more severe.
>
>Does anyone else have endometrial implants on the cervix? If so, are you
>prone to post coital bleeding?
>
>Also, which alternative therapies that you have tried has helped with
>endo? My main aim now is to preserve my fertility quotient (hopefully I
>have it!)and to slow or reverse the progression of the disease.
>
>hope to hear from all of you,
>
>xxxxx
>M
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