ENDO Messages for August, 2006: Re: Stage IV Endo..hysterectomy decision..Extreme sadness

Re: Stage IV Endo..hysterectomy decision..Extreme sadness

From: Elisa (anonymous@obgyn.net)
Thu Aug 31 10:17:45 2006

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Hi Kathy~

I just want to take a minute to stop and give you a BIG HUG from me. I wish I could sit there next to you and just talk and listen. I have to say that point you are at is the saddest point I can recall in this walk with endo. Talk about confusion huh? How did all this happen so rapidly and now I am in a position to make all these life alterating decisions? Up, down, left, right...crazy all together.

I am sorry that when you went through all these treatments that some type of regimn didn't help cease your cycles until you could conceive. I know you have been on Lupron etc...but I hate to see you go right for hysterectomy without one more thought here on a good plan. I will share this with you and maybe somewhere in here there still is an option to save your reproductive organs.

I took Lupron to cease my cycles. Then I went to my specialist out of state. They dissected the endo out and I stayed on consecutive b-control until we wanted to try to conceive. So all his hard work was not getting messed up again with monthly cycles.

I was able to conceive a year or so later but ended up loosing the baby due to other complications urologically with this disease as well. So I believe if your stages are Stage IV, like Vicki says with a good Dr. who treats this disease very seriously, they can give you the ability to have children.

I hope this gives you some new hope. I know you hate to start all this all over again, but it needs to be determined how much has grown back. Maybe your Dr. will let you use Consecutive B-control over time and see if that will help make what is in there dormant. These are just thoughts. I know the key is to get it dormant (not active - just from what I have heard waking it up to look for it and then they are in there with a scope to see it and use the probe to poke it..there it goes spreading again down the road.)

The dormant approach allows them to go back in and just see it there and go get it out preferrably with dissection (cutting out) to give you a really clean slate to start with. I know this is all a matter of preference. Each way works differently for everyone. I just hope that you take this time to stall the hysterectomy unless you are sure you don't want any children.

I am a post hyterectomy (including ovaries) and I still have active endo too.

I am here for you. I am so sorry for your heartache right now. If there is anyone I can help, just let me know.

Thinking of you....

--
Elisa

At Thu, 31 Aug 2006, anonymous@obgyn.net wrote:
>
>HERE IS HELP OUT THERE I ALSO AM YOUNG NO KIDS AND ALSO GOT TOLD I
>NEEDED A HISTOR.  I HAD PAST STAGE 4 OF ENDO, ADHESIONS TO MY BREASTS,
>CYSTS, TYUMORS, MY ORGANS WERE BINDED TOGETHER.THIS WAS MY 3RD SURGERY.
>AND THE DOCTOR I WAS GOING TO GAVE UP HOPE.  I HAD SURGERY IN APRIL 06
>WITH THIS DOCTOR AND NOW CAN HAVE KIDS AND HE TOOK OUT MY ENDO,
>ADHESIONS, CYSTS, TUMORS, APPENDEX.  HE ACCEPTS INSURANCE IN THE TN
>OFFICE THATS WHERE I WENT...  GIVE HIM A CALL BEFOE YOU DO ANTHING MAJOR
>TO YOUR SELF.  I WAS TAKING NARCOTICS EVERYDAY FOR MONTHS I WAS A MESS.
>HERE IS HIS WEB SITE, http://www.gyndr.com/ TRUST ME HE CAN HLP YOU!!!
>  FEEL FREE TO EMAIL ME FOR MY EXPERIENCE WITH HIM  VICKIFL05@YAHOO.COM
>  GOOD LUCK
>  VICKI
>
>At Thu, 31 Aug 2006, Maya wrote:
>>
>>At Sun, 30 Jul 2006, Kath wrote:
>>>
>>>Hi.  I'm new to the board but I'm hoping to find some support here.  I've
>>>been dx with Stage IV Endo years ago.  I'm single and have never had
>>>children.  I actually tried to conceive for almost 2 years, beginning a
>>>little over 2 years ago.  I'm at the end of my journey as my RE has told
>>>me that I really need to have a Hysterectomy.  My Ob/gyn told me that I
>>>needed one 7 years ago after she did my first Lap.  I've been through
>>>more laps, Lupron, fertility treatments, birth control pills, etc....Now
>>>I'm taking Vicodin every month and still suffer from a lot of pain.
>>>Anyway..the reason I'm writing tonight is because I've been so sad.  I'm
>>>Never like this.  I have to give my RE the decision to do the H on
>>>Tuesday.  I'm going to ask that we wait until the end of Winter so I'm
>>>not depressed from Winter along with the H.  Has anyone else experienced
>>>this horrible sadness? I just can't stop crying.  (This is the opposite
>>>of how I usually feel) If so, what did you do to make it go away? I Hate
>>>being like this!!!!!
>>
>>HI Kath,
>>
>>Im really sorry to hear you're feeling this way.  Bih warm hug to you.
>>I've heard that Chinese Acupuncture therapy helps with infertility and
>>endo pain.  I am planning to try this out myself.  Could you perhaps
>>give this one last shot before going for the hysterectomy
>>
>>M

Next message: Alyson: "Re: Endo on cervix?"
Previous message: Elisa: "Re: Bladder and Yeast Infections in Women with Endo?"
In reply to: anonymous@obgyn.net: "Re: Stage IV Endo..hysterectomy decision..Extreme sadness"
Next in thread: Mindy: "To Kath Re: Stage IV Endo..hysterectomy decision..Extreme sadness"

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