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To Elisa: Re: TO ANON _ Re: ad this if you are considering chemical or surgical castration (ie Lupron or Hyst)
From: Karen (anonymous@obgyn.net)
Wed Aug 30 22:35:12 2006
Dear Elisa, I'm sort of new to the site but I've been reading all the
messages and I just wanted to thank you for your patience, knowledge and
understanding with all the endo angels. I think at some point we all
freak out and feel so hopeless and confused!!! I was also put on Lupron
without knowledge of any other choices my Dr. didn't even explain to me
what the desease was he just told me it was endometriosis and this was
going to take care of the pain. I regret it now that I know more about
it and all the horrible side effects that I went through, but you are
right about different women reacting differently to Lupron and it's not
like we have a whole lot to choose from either. Anyway, I just liked
the way you handeled the situation and I applaud you, we really need
people like you to give us good advice and peace of mind. I am also
thinking about joining the Endo Association so that I can join one of
their support groups here around my area. I'm glad I found this forum,
and I'm greatful for all the endo angels. I wish you all better days
always!
Karen
At Wed, 30 Aug 2006, Elisa wrote:
>
>Dear Anon~
>
>That is OK...I can see how you came to that conclusion but I think your
>referring to the Joe with Endo and the other examples they use with
>regard to "just cut it off" and move on and that's just not the way this
>disease is. I am part of that Association and as soon as you said
>this...I knew exactly what you were talking about now.
>
>I can understand you are frustrated and that is normal to feel that way.
>Let's face it...we do B-Control methods (consecutive or likewise) to
>cease these cycles and then we take a HUGE leap into Lupron or Synarel
>type products.
>
>Unfortunatley, in order to help control this beast some of us have no
>choice but to take this drug. I agree that they need to stop promoting
>it as the best choice when there is really no choice other than
>suffering. Now, some of us are not as invaded with it and some are to
>greater degrees.
>
>I hope your Dr. actually looked before just putting you on this drug to
>see to what degree your endo is. I felt weird with this medicine for a
>very long time and still have some lasting side effects. On the other
>hand...what do we do? I have had this 16 years now and there still is no
>cookie cutter way to manage this because everyones body is different.
>
>I wish you some comfort as you go through this. I just hope and pray
>you will continue to help cease these cycles or all this that you are
>going through will not be worth it in the end. Feel free to email me
>anytime you have any questions or concerns and I will help you the best
>I can.
>
>Have a good day!
>
>--
>Elisa
>
>At Wed, 30 Aug 2006, anonymous wrote:
>>
>>I'm sorry. You are right, Lupron is not "castration" because it is not
>>permanent. The Endo book from the Endo Assn does refer to total hyst as
>>castration...if removal of the testicles is castration, then so in
>>removal of the ovaries.
>>
>>Lupron has been a nightmare for me. I am infurated that I was put on it
>>before a surgical diagnosis and when I asked, "Can't you just take out
>>the diseased tissue?" and was told that it would just recurr. Now I
>>know I had other options with good odds that I was unaware of (ie
>>excision surgery).
>>
>>Please, use Lupron only as a last resort. I wish I could go back and
>>not take those shots. And I am mad because they aren't wearing
>>off...it's been more than two weeks since my last month's shot one was
>>up and I am still having debilitating hot flashes and painful dryness.
>>And yes, I'm afraid I'm emotional and angry, bad combo. I'm sorry I
>>scared you by being inaccurate. I'm afraid that Lupron is still a scary
>>drug though.
>
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