ENDO Messages for August, 2006: Re: just diagnosed - recommended treatments?

Re: just diagnosed - recommended treatments? - a little long, sorry.

From: Jennifer (anonymous@obgyn.net)
Tue Aug 29 14:37:18 2006

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In reply to: amy: "just diagnosed - recommended treatments?"

I was on Lupron 1 shot a month for 6 months when I was 18. I don't remember much as it was 10 years ago, but I can tell you I had many of the menopausal side effects. If you can go through that, you'll lick menopause later on in life. I can tell you it helped me for the 6 months I was on it and then the endo pain came back and I had to have another lap shortly afterwards. I have been on a number of birth control pills, taken continuously since I was 18 also. I recently started taking Yasmin and I like the way that I have responded to that in just a few days. I went from having no libido to feeling much better.

I would say two things, depending on what other types of treatment you have tried up to this point and what your lifestyle is like. Lupon can really wear you down. So if you have children or something or someone that demands a lot of your time and attention, then Lupon wouldn't be my first choice. It affects people very differently as you can see from the posts on it before. My sisters both were on Danzol and I opted not to take that for the simple reason that their side effects and results were much worse.

Secondly, if you belive your doctor has your best interests in mind and that he/she seems to know their stuff when it comes to treating this, then I would sit down and really talk to them about it and see what other types of treatments they might also suggest if you are truly terrified of taking Lupron.

Nothing against these websites that support Endo and the blogs, but a word of advice that I got from my endo specialist. read things carefully, write down any questions, ideas that might work for you and concerns you have about things that you read. Then take them to your dr. These websites and the wonderful people here have great advice and information on what works for them. But it works for them. Everything affects people differently, and we aren't your dr and we don't know your body and your medical history. If you read that some treatment had horrible affects on 20 out of 25 people who wrote about it, then use your best judgement on whether or not you even want to consider it. Do alot of research if you are truly concerned about this disease and its affects on you and keep your options open. I haven't considered alternative medicine until recently. I wish I had. So don't rule out seeing an herbalist, acupuncturist, or other types of treatment that you might be willing to try. From what I have found on eastern medicine, it appears that they have a lot of success of endometriosis. I'm not about to settle when someone tells me it is medication or surgery. Not anymore. And a good doctor should also support your ideas on alternative medicine and let you know if they believe that will help.

As far as children go, everyone here will probably tell you along with any health professional that the sooner you plan to have children the better. That doesn't mean go out and get knocked up now. I have been with my boyfriend for 4 years and we plan on getting married, but I'm not about to rush getting pregnant because I want kids. Do it when you are ready and are committed. If it doesn't happen for a while and you can't, there are plenty of people I know who have endo who have had success with IVF and who have adopted.

In other words don't let the scare of the unknown allow you to make any harsh and rash decisions. If there is any one major thing I have learned it is don't let the disease eat you up. That is what it feeds on, emotions. Stress, depression, anger, etc. Don't let it own you.

p.s. the reason my dr explained me going on the continuous pills for me years ago was because the process of having your "cycle" every month was too hard on my system. So to go from every month to every 3 months or so was a good way to ease the pain an the trauma it was doing. There are some pills that allow you to only have a 3 day period which may also help. Or be something to try at first. talk to your dr about your options if you are reluctatnt to go on Lupron. Remember you can also try it and then stop treatments if you decide it isn't working for you.

Good luck. God Bless!

Jennifer aka. Dot

At Mon, 28 Aug 2006, amy wrote: >
>I am 29 and was just diagnosed with moderate endo. My Dr. suggested
>Lupron, but I was wondering if there were other options out there
>without so many side effects. I have been on Yasmin for 5 months now
>and I like that. Will taking pills continously for 2-3 months at a time
>have the same affect as the Lupron would? I have bad cramps, but that is
>really the only symptom I'm currently struggling with. Also, I think
>it's important to mention that I do want to have children one day.
>
>Any recommendations?
>Amy

Next message: Elisa: "Preparing a letter to our U.S Senators - Bringing Endo to the fore front once again..."
Previous message: Jennifer: "Re: ADVICE NEEDED: should I stop taking birth control pills?"
In reply to: amy: "just diagnosed - recommended treatments?"

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