ENDO Messages for August, 2006: Re: ADVICE NEEDED: should I stop taking birth control pills?

Re: ADVICE NEEDED: should I stop taking birth control pills?

From: Alyson (anonymous@obgyn.net)
Sat Aug 26 11:38:39 2006

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In reply to: k.: "ADVICE NEEDED: should I stop taking birth control pills?"

K. I have been through the same conundrum. My doc has had me on Danazol for the past 4 months, Aygestin prior to that, Seasonale with a different doc prior to that....I have decided to go off the meds after seeking advice from an ObGyn that specializes in both traditional and alternative/natural medicine. In my case nothing has helped with the pain. Not surgery, not meds. The past four months on Danazol has made my hair fall out, I've gained another 15 lbs, and feel like I haven't slept in a year. In my case I also have poly cystic ovaries and I do not typically have a period if I am not on the pill. When I consulted the doc she indicated that the meds are prescribed in an effort to curb the estrogen dominance that women with endo typically have. She said that bcp's are meant to lessen the estrogen by replacing trciking your body into thinking it has already ovulated. She assured me that there is no medical danger in not taking the hormones, but that you are not doing anything to curb the estrogen if that is what you decide to do. So, we moved on to discussing natural progesterone cream. It is something that has been discussed alot on this site. Quite a few women here swear by it. The doctor's opinion is that the progesterone cream acts in much the same manner as the pill/hormone treatments, but because it is natural it does not carry the side effects. Her suggestion was to go to the health food store and look for natural progesterone cream with 4-5 mg of progesterone per dose and to stay away from Phytoprogesterone as that is made with compounds similar to estrogen. I am trying that along with an herb called Vytex for three months. If I do not find significant relief from that she will then prescribe bioidentical progesterone cream. That is made in a compounding pharmacy and is usually a much higher dose than what is sold in the health food store. I am also cutting all soy out of my diet, limiting alcohol and coffee, as well as high fat foods. Check out this web site: http://www.endo-resolved.com There is information about alternative treatments, the "endo diet", and progesterone cream. My only caution would be that you consult with a doctor before you stop taking any medications. Alyson

At Fri, 25 Aug 2006, k. wrote: >
>Hi All,
>
>I was diagnosed with endo when I was 23 (I'm 29 now). Following two
>surgeries to remove cysts / endo, I was put on Danazol for six months,
>followed by many different types of birth control pills. I've been on
>Yasmin for the last 4 years.
>
>I'm considering stopping the pill because it doesn't seem to be helping
>my endo pain that much anymore, and I've also since developed depression
>(which I know is linked to endo, but I also think it's due in part to
>being on the pill for so many years). I'm being treated for the
>depression with anti-depressants, but I kind of just want to get off all
>of this medication! (it's so frustrating). In addition, I have started
>having a lot of pain before and after my period (for about a year now),
>pain during sex (which I've always had since I've had endo), and
>bloating, the feeling of adhesions, etc. I have been checked out by my
>doctor and she thinks that the pain is mostly due to adhesions from my
>surgeries. but my question is: could having my period every month be
>contributing to the pain in spite of taking the pill? (I know the pill
>is supposed to help with pain, which it did at first, but it doesn't
>seem to be helping that much anymore). If I go off the pill, do I risk
>developing endometriomas (cysts) again? How can I deal with the pain +
>the pain during sex (I have a wonderful partner who is completely
>understanding, but he feels very bad when I experience pain when we're
>intimate)?
>
>I am so frustrated! any advice is welcome.

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In reply to: k.: "ADVICE NEEDED: should I stop taking birth control pills?"

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