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Re: ADVICE NEEDED: should I stop taking birth control pills?From: Jennifer (anonymous@obgyn.net)Fri Aug 25 15:18:05 2006
Hello, After reading your little blog there I felt like I was reading about myself, just a year or two ago. Just to give you an idea. I was diagnosed with endo when I was 16. I have been on the pill since. I am now almost 28. I have had 4 surgeries and I don't know how many different brands of pills I have been on. I actually went the the dr yesterday for my normal yearly exam and this was one of my concerns as well. She told me that it would just make my adhesion pain worse. Reason being every time you cycle and have a period, it is very hard on womens systems who have endo. She didn't suggest that unless I wanted to go back on Lupron. (something I wouldn't personally do again, but I don't discourage people from trying it for the first time. It isn't horrible, but it wasn't a vacation either. It did make the pain go away for the 6 months I was on it.) I don't know if you are taking them continuously or if you still are getting a period every month. I have been on the continuous route for 6 years now. The pain has gotten much better since I have been doing that. I have adhesions quite badly. (They wanted to remove an ovary because the adhesions are so bad.) She just put me on Yasmin yesterday. I have recently taken Sprintec- is a good one to try, very low hormones. I was also on Ortho Tri Cyclen Lo. That worked for a while but I got migraines from it, which is why we are trying the Yasmin now. She also mentioned that once the pill gets into your system after a few years and it doesn't work as well as it does in the beginning for pain management. It is possible you just need to try a new one. I would suggest making an appointment with your dr again and talk about trying Yas or Lo Estrin 24 for like 3-6 months to see if that helps. The periods are supposed to be more around 3 days. Depression is quite a problem with this disease, and it feeds on hormones. Stress, depression, etc. If you can try to cope with those feelings it would probably help. Excercise is a big part of it too. I know I don't feel like working out either. But I am about to get on my bike and take off for another 10-15 miles. I feel so much better after I do and it is nice to get it over with. Tai Chi is a great way to relax and stretch and balance things out. I am also going to try acupuncture for a while and see how that helps. My dr suggested that it has worked well for a number of her patients. so to recap: talk to your dr, change your pill 4 years is a long time for 1 pill. I usually try a new one every year or every 2 years. 2. try taking it continuously if you aren't already. 3. consider taking Lupron or another type of hormone shot if you haven't already. I would suggest Lupron over Depo or any of the others. 4. try something you wouldn't normally try. Acupuncture, consider a clear passage clinic or see an herbalist. But be sure you keep your depression in check and make sure your partner is keeping an eye on it too. That can take a quick turn really fast in the bad direction. I have pain during sex also. I try different positions, try more foreplay to try to relax more. Try to use a heat pad maybe 20-30 minutes before you have sex to help ease the pain if it gets really bad. Go slowly, and see what works, I don't know what kind of pain you have and this is getting pretty long, but if you have any other questions, feel free to email me. I know its hard to stay positive, but keep reading up on things and bring them to your dr. if you don't feel they are knowledgable enough in endo, go see a different specialist. I don't know where you live, but there are quite a few endo experts in Chicago. Good luck and stay well.
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