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Re: ADVICE NEEDED: should I stop taking birth control pills?
From: Lorilee (anonymous@obgyn.net)
Fri Aug 25 14:45:50 2006
I am sorry that you are having to go through all of this! It is very
upsetting I know, but it is wonderful that you have an understanding
partner.
I have not been on the medication that you have been on. I was on birth
control pills to help regulate me (which did not work), and then of
course pain medication to help deal with the pain. Of course the
surgeries, but bottom line your endometriosis does not go away.
Everytime you have a period the cysts burst and spread in your body. The
laproscopy is basically a temporary fix.
As far as pain during intercourse, it is very frustrating. I would take
a pain pill to relax me and help, and you just find a way that you both
can enjoy.
As far as pain goes before and after your period, you will have that.
I know that this does not sound so encouraging, but you are not alone in
this. You just have to research, and try different things, and doctors.
There are so much helpful advice, websites, and discussions here as
well.
We are all here for you!!
But you must not dwell on this, you must try to keep your chin up, and
always look at the good things in life. I hope this helps a little.
God Bless,
Lorilee
At Fri, 25 Aug 2006, anonymous@obgyn.net wrote:
>
>At Fri, 25 Aug 2006, k. wrote:
>>
>>Hi All,
>>
>>I was diagnosed with endo when I was 23 (I'm 29 now). Following two
>>surgeries to remove cysts / endo, I was put on Danazol for six months,
>>followed by many different types of birth control pills. I've been on
>>Yasmin for the last 4 years.
>>
>>I'm considering stopping the pill because it doesn't seem to be helping
>>my endo pain that much anymore, and I've also since developed depression
>>(which I know is linked to endo, but I also think it's due in part to
>>being on the pill for so many years). I'm being treated for the
>>depression with anti-depressants, but I kind of just want to get off all
>>of this medication! (it's so frustrating). In addition, I have started
>>having a lot of pain before and after my period (for about a year now),
>>pain during sex (which I've always had since I've had endo), and
>>bloating, the feeling of adhesions, etc. I have been checked out by my
>>doctor and she thinks that the pain is mostly due to adhesions from my
>>surgeries. but my question is: could having my period every month be
>>contributing to the pain in spite of taking the pill? (I know the pill
>>is supposed to help with pain, which it did at first, but it doesn't
>>seem to be helping that much anymore). If I go off the pill, do I risk
>>developing endometriomas (cysts) again? How can I deal with the pain +
>>the pain during sex (I have a wonderful partner who is completely
>>understanding, but he feels very bad when I experience pain when we're
>>intimate)?
>>
>>I am so frustrated! any advice is welcome.
>
>I have taken Cerazette for about 7 years: with this pill I hadn't my
>periods anymore, so the pain was also gone (I only had pain during my
>periods). Ask your doctor for this kind of pill!
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