ENDO Messages for August, 2006: Re: ADVICE NEEDED: should I stop taking birth control pills?

Re: ADVICE NEEDED: should I stop taking birth control pills?

From: Misty (anonymous@obgyn.net)
Fri Aug 25 13:40:14 2006

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Hello, I am in the same situation as you. I had to get off of my old bc pill because of massive mood swings. They prescribed Yasmin for me also. My doctor doesn't want me having periods so I don't take the placebo pills (the pink ones). I have a slight change in the pain, not enough to get happy over, since I have been on the pill. I was told by my doctor that I should see a change in the pain within 2 to 3 weeks. I deal with depression also and I will not take an anti-deppresant. I know exactly what you mean about wanting to get off all the medication. Have you called and talked to your doctor about the pain? I would do so immediately and just talk to them about your feelings with all the pills you have to take. Maybe they have another option for you. I have also heard of women being on bc and it helping the pain then it comes back after a while. I am just speculating that maybe your body becomes immune to the pill that you are taking. I think having your period in general with this disease causes a lot of pain. You should talk to your doctor about stopping it and the reccurance of the cysts. Maybe they can make it for you to not have a period. I also experience the pain before during and after a cycle. So, 3 weeks out of the month I am miserable. As far as the intimacy thing goes. I too have problems in that area. I wish that I could give some really good advice but, I have none. Just keep talking to your mate and explaining everything. My husband is wonderful with everything that has to due with this disease ( just like yours) but, I also keep talking to him about it and telling him that I feel bad for him. His reply is I'm fine your the one hurting and when you hurt I hurt. Just try to keep the intimacy in other areas. Talking, hugging and kissing. I'm sure your mate understands but I know how you feel. Like your not a whole woman!! My self image of being a woman throughout all of this has went down a lot. I try to keep my had high and my husband helps out a lot also. Just know that oyu are not alone and we all here try to help out as much as possible. Take care of yourself and keep us posted. PAIN FREE DAYS TO ALL Misty

At Fri, 25 Aug 2006, k. wrote: >
>Hi All,
>
>I was diagnosed with endo when I was 23 (I'm 29 now). Following two
>surgeries to remove cysts / endo, I was put on Danazol for six months,
>followed by many different types of birth control pills. I've been on
>Yasmin for the last 4 years.
>
>I'm considering stopping the pill because it doesn't seem to be helping
>my endo pain that much anymore, and I've also since developed depression
>(which I know is linked to endo, but I also think it's due in part to
>being on the pill for so many years). I'm being treated for the
>depression with anti-depressants, but I kind of just want to get off all
>of this medication! (it's so frustrating). In addition, I have started
>having a lot of pain before and after my period (for about a year now),
>pain during sex (which I've always had since I've had endo), and
>bloating, the feeling of adhesions, etc. I have been checked out by my
>doctor and she thinks that the pain is mostly due to adhesions from my
>surgeries. but my question is: could having my period every month be
>contributing to the pain in spite of taking the pill? (I know the pill
>is supposed to help with pain, which it did at first, but it doesn't
>seem to be helping that much anymore). If I go off the pill, do I risk
>developing endometriomas (cysts) again? How can I deal with the pain +
>the pain during sex (I have a wonderful partner who is completely
>understanding, but he feels very bad when I experience pain when we're
>intimate)?
>
>I am so frustrated! any advice is welcome.

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