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Re: About endo info and research.....
From: PennyDoll (anonymous@obgyn.net)
Fri Aug 11 12:13:59 2006
http://www.jenniferlewis.com/links.htm
I found this just recently, and really has alot. I didn't have time to
get out my list to go through it, but once I do I can let you know if
there's something better that I have. Though this is pretty thorough I
believe. (As good as can be expected for now I guess...to each their
own.) As for laps, that I just kinda learned through sites a little. I
had major surgery before anything, so the few little holes they put in
you was wonderful to me. There's a difference in how doctors perform
it, but you can find the different ways. I'm not too sure of an exact
site, but they have info here, and just do a search for Laps for Endo,
and you should get info, pics, diagrams, etc. As for Lupron, I was
never on it. I knew too many people who had taken it, I didn't like it
or what it did, and so I was put on SYNAREL nasal spray. It does the
same thing (instills fake menopause to slow/hasten endo...or supposed
to.) But instead of the Lupron where the side effects are more, last
longer, more serious, and is a pain to get off of, the synarel has fewer
and is easy to stop with few to no complications. But that's my
opinion. I know plenty of women who do the Lupron, but I think Synarel
isn't heard of and Lupron is just the well known common thing. Plus I
would believe it depends on ur case. Either way, the Synarel didn't
work, and my endo never worked for anything, it just continued
progressing, so I'm glad I could get off of it quick. But that's
something between yourself, and your doctor.
http://www.google.com/search?hl=en&lr=&q=Synarel
This is just a search, with lots of links, and other links/search words
at the top. It's easier to do your own seach to find out what you would
like to know. If I can help you, or have more info so I can provide
more, let me know or email me. Good Luck
At Thu, 10 Aug 2006, Audrey wrote:
>
>Kris,
>
>What do you feel is the most informative site for Endometrosis,
>laprascopy and Lupron treatment?
>
>Thanks,
>AB
>
>At Tue, 8 Aug 2006, PennyDoll wrote:
>>
>>To those of you who are new, I thought I would offer my 2cents about
>>info. After years of pain, and no doctor believing me, I found I had
>>stage 5 endo spread from top to bottom front to back. That was just
>>last January 21, 05. I had cysts burst, ER stays, and surgery for total
>>removal of my left side since all my repro organs were enveloped in a
>>large mass. Looked like a jumbo grapefruit, and couldn't see any
>>organs, just mass. So within no time, and just turning 22 I had a major
>>surgery, and told almost all my insides are stuck like glue. I was at a
>>clinic at the time due to no insurance from moving, and they didn't like
>>to deal with me or my case. They didn't believe in pain relief either.
>>I actually had one doctor tell me that percocets should only be used on
>>dieing cancer patients for pain!!! Finally in June, (after 2 more laps
>>by that awful place) I got a wonderful Dr. I had more surgeries, but he
>>also realized the pain from the endo, surgeries, etc. He worked with me
>>very closely. Even tho I'm "so young to be on any narcotics" as 99%
>>say, he understood. There were points where he would joke I was on
>>enough meds to knock out a horse or a man 3 x's my size. (Since i'm
>>only 5'5" and 105lbs.) Finally after playin with all the pills, I went
>>to the patch. I bless that thing and hold it in high reguards. But
>>ever since I had Dr's who don't believe me, help, or are just naive, I
>>did my own work. I have a folder of endo info from beginning to end.
>>Slight to severe, and all types of stories. I'm actually working on a
>>intensive website for a large mass of info to be in one place, chat
>>rooms, support, etc. Just taking a while. But what I found out is that
>>you can research every med book, document, story, and to the end of the
>>web and find every piece of information there is, but it still doesnt
>>answer alot. I've realized it can help, but in the end each case is
>>different and you must apply what you know, try new things, and what
>>works for you. There's a zillion different things. And how complex
>>this disease is, and how little is known or done to find ways to stop or
>>help it doesn't help. Until then, do your homework. Make a folder,
>>cards, references, etc. I have tons. Some useless, some helps. I
>>think this forum is the best thing. It actually gives you the chance to
>>talk to others who may be in the same boat. Not just a text story. And
>>learn from their experience.
>>
>>Lastly, push to find a good Dr. Every day I ask myself if I had pushed
>>harder for the years and years I was in pain, would they of found it
>>when it was minute and able to do something earlier to help save my
>>organs, and the inside of my cavity that is now a spiders web of glue?
>>But there is no answer. And I have lots more to go through. And even
>>with a full hysterectomy and cervix removal, will I lose it physically
>>and mentally...knowing I may still have to deal with this obsurd battle
>>the rest of my life due to Dr's saying "You're too young!" It's ravaging
>>and does put alot into your life, or should I say take away. And alot
>>of people don't know about it, and don't understand. So find a good
>>support, you'll need it! If nobody gets you, come here......it's
>>absolutely wonderful. I've been on here almost since the beginning
>>(Last april I guess.) off and on, and it really helps. Plus u can ask
>>and question your heart desires, and it's ok!! Good luck to all.
>>
>>--
>>PennyDoll27@aol.com
>>Kris
>>
--
PennyDoll27@aol.com
Kris
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