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Re: Pregnancy and Stage 5 Endo....HELP

From: anonymous (anonymous@obgyn.net)
Mon Aug 7 18:25:12 2006


Dear PennyDoll,

Here's where the women get separated from ... well, I don't know what, but you've got a rough road ahead of you if you're feeling this bad at 14 weeks.

You asked for advice/suggestions/info/whatever so here's my $.02 keep what makes sense to you and just pass over what doesn't. I'm not interested in debating any of this with anyone. You are at a crossroads in your life and this is where you make the decision to do what's best for your baby or what makes you feel better. People may or may not judge you but only you can make this decision and it has to be one that YOU can live with. Don't listen to anyone else's "I could NEVER do THAT!" because quite frankly, they really don't know what they could or couldn't do when faced with the same situation.

#1 stop looking for pain relief in the form of a pharmaceutical product because you are pregnant and your baby will not tolerate it well. Tylenol is your only pharmaceutically safe option. Try using other pain relief methods such as relaxation, massage and meditation, accupuncture, etc. CAUTION: NO HOT TUBS! (unsafe rise in body temperature). Try calling a pain management center near you and talk to someone about the options available to a pregnant patient. This is their area of expertise and if anyone would know what can be done for you, they would.

#2 Why are you and your husband fighting? You only need to answer this question to yourself, not to me and not to this board. If you are both beyond exhausted then I strongly suggest you remedy that situation first. If you can manage it try taking a weekend away from home, phones, internet, bills, and problems and just be together. So what if you spend the entire weekend in bed napping - it's what you need. If you can't manage going away then try making the rest of the world disappear for a bit and unplug the phones, turn off the computers, rent a weekend's worth of DVDs order some food to be delivered and just try to rest, recuperate and recover a bit.

#3 Your pain is not psychological in it's entirety. You may be having an exaggerated respsonse due to the overwhelming fatigue and exhaustion but that is just as real too. If your doctors are being as unsupportive as your post makes them sound then you need new doctors. You do not need the added stress.

#4 Reduce your stress (this goes for your hubby too!). Find ways to simplify as much of your daily life as you can. Use your free time (both of you) to prepare for the week. If you both have mon-fri lives then use the weekend to cook some things ahead that can just be re-heated during the week when you're more tired and stressed. Get a slow-cooker if you don't already have one and make at least one meal per week in it - you'll be so glad on the days when you have no energy or strength left in you to cook a meal. You just put everything in it in the morning, turn it on and when you come home it's ready to eat.

#5 Refocus your energy and attention to the baby you are carrying and what life will be like after his/her arrival. Learn to knit and make a blanket - the quiet activity will help soothe you. As badly as you may be feeling physically - it's nothing compared to the empty aching longing that so many of us feel that there is no pill or surgery for. There are so many women on this board and in the world who would gladly go through what you are if it meant having a baby to hold afterwards.

I do hope this helps you and that you are able to find some relief for your pain soon and that you and your husband are blessed with a beautiful, healthy, happy baby.

At Mon, 7 Aug 2006, PennyDoll wrote: >
>Ok, I'm even still shocked, but as is my other post I became pregnant
>out of nowhere about one month after a scheduled full hyst. and cervix
>removal that I decided to cancel since I wasn't ready. I'm very elated
>and excited, but the pain is just gettin worse, a cyst on my right ovary
>(only one i have left.) has doubled in just 2 weeks, now about 4.8cm x
>whatever the other 3 or 4 dimensions were. I also got a blood clot
>(which I've never had, and they did nothing but tell me to put heat on
>it. Not being able to walk for a week and a half.!!!) plus my right
>hip, side, tailbone (which I already have problems with since it
>protrudes due to compacted discs.) are killing me. Nothing works. I
>cry about 9 hrs a day. If lucky lately, I get a total of 2 hours sleep,
>and im just miserable. My husband is getting tired and we do nothing
>but fight. The doctors tell me since I'm pregnant I can have nothing.
>They stopped my fentanyl patches at my first visit, and told me to take
>tylenol. That was two months ago. I know this isn't withdraw pain,
>it's legit. I even had my Maternal Fetal Meds Dr. tell me they'll do
>nothing, and that all my pain was Psychological and I need a
>psychiatrist!!! Like I'm a loon! I'm not stupid and I understand the
>pains I have to go through for this amazing wonder that's happened, but
>isn't there anything besides a pathetic bottle of tylenol (which if
>you've been on high drugs as I have, you know it's like drinking a glass
>of water.) I don't know what to do. It's sad when I'm so happy and
>realize how lucky I am, but at 14 weeks i'm in so much pain that I
>wonder if I should of just had the surgery, and that's making me feel
>horrible like I'm doing something wrong. I know there has to be
>something. I know all about endo and effects, but being pregnant and
>getting no help from any dr's during this, and just getting worse is
>eating me alive.....any advice, info, drug info, suggestions, etc. would
>be more then greatly appreciated. I'm still looking into it myself, but
>the views are bad on it. Plus I'm focusing on having to have a
>C-section...then my full hysterectomy and cervix removal about 6 wks
>later, or after recovery. It seems like all I have to look forward to
>is more pain. And i'm only 23. Recovery from my bikini line incision
>for removal of my whole left side took about 2 months recovery, and I
>still had problems. Can I do this? A c-section, recovery, baby, then
>another surgery soo soon? I know this is alot. So please respond, email
>me, or IM me PennyDoll27 (aol)
>Thanks
>
>--
>PennyDoll27@aol.com
>Kris
>




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