ENDO Messages for July, 2006: Re: Lyrica for Endo Pain

Re: Lyrica for Endo Pain

From: Tracey (anonymous@obgyn.net)
Mon Jul 31 17:48:47 2006

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In reply to: Barbara: "Re: Lyrica for Endo Pain"

At Mon, 31 Jul 2006, Barbara wrote: >
>Tracey,
>
>I have tried vicodin and found that for me personally it didn't help the
>pain. It did make me tired and that sometimes helped me get some sleep
>since often the pain kept me awake. It made me very naseous though, so
>I just wanted to let you know what to expect. Medicines affect each of
>us differenlty but sometimes it helps to know ahead of time how it might
>work. To be honest I can't say that any medication has helped with my
>pain, but I'm hopeful to find something that will.
>
>Good luck and take care,
>Barbara
>
>At Mon, 31 Jul 2006, Tracey wrote:
>>
>>At Mon, 31 Jul 2006, lisa wrote:
>>>
>>>Wed, 12 Jul 2006, Sharon Ann wrote:
>>>>
>>>>At Tue, 11 Jul 2006, Katie wrote:
>>>>>Dear Katie ,My Endo angel
>>>>
>>>>Just want youto know your not alone you have all of us here.
>>>>Im just 42 and when i was 27 my gyn told me a hysterectomy was the cure.
>>>>well its 14 operations and years later and still in pain and looking at
>>>>#15 sugerie:( and the worse part is my gyn like your said the same
>>>>thing.go some where else i cant operate on you any more because the last
>>>>op they had to cut into my bowels.
>>>>
>>>>Its bad when your doctor tells you to go some where else when we look to
>>>>then for help.
>>>>
>>>>Well im thankful for this forum
>>>>And all Endoangels are always in my prayers and thoughts.
>>>>
>>>>Sorry about my typing I just got back from ER they gacve me shot and
>>>>sent me home.
>>>>
>>>>But just wanted you to know anytime you wanna chat, vent , anything im
>>>>here /we are here for you and all
>>>>
>>>>Endoangel
>>>>Sharon Kross
>>>>
>>>>>Hi ladies. First off, I have to tell you this has been such an
>>>>>informative site for me during my battle with endo. I was diagnosed
>>>>>with Stage IV in October, 2005 (age 39). The doctor said it was so bad
>>>>>my only hope was through a hysterectomy. After a 2nd opinion concurred,
>>>>>I went forward with the surgery in January, 2006. The surgeon said
>>>>>afterwards that it was the worst case she'd seen; I was full of the
>>>>>disease. In fact, she had to leave my cervix because it was "cemented"
>>>>>to my bowels with the endo. Well, the pain with the bm's never went
>>>>>away - I was doubling over in pain 2 weeks post op and still am today.
>>>>>About 6 weeks post op, the daily pelvic pain returned and has only
>>>>>gotten worse. My ob/gyn has basically washed her hands of me and
>>>>>referred me to a pain clinic. I got 3 other opinions before actually
>>>>>going to the pain clinic and they all agreed there was nothing that
>>>>>could be done. Some, including my ob/gyn, are of the mindset that w/o
>>>>>ovaries - you can't have endo. I know this is wrong. Well, the pain
>>>>>clinic basically said they can't do anything for me. Nerve block
>>>>>injections apparently don't work on abdominal/pelvic pain and they don't
>>>>>prescribe narcotics unless you have cancer. So, what he did do was
>>>>>prescribe an anti-seizure medication called Lyrica. He believes that my
>>>>>pain comes from my abdomen undergoing mini-seizures. Has anyone ever
>>>>>heard of and/or taken Lyrica for endo pain. I'm sorry this was such a
>>>>>long post! Any help/input would be greatly appreciated! Hope everyone is
>>>>>having a pain-free day :-) Katie
>>>
>>>I have tried Lyrica with no luck. I have had endo for over 25 years,
>>>I'm now 41, I've has a hysterectemy and currently am waiting for another
>>>surgery, I've had many. I have been diagnosed with many things, but
>>>nothing has helped. I'm in so much pain, it's hard to get out of bed.
>>>as soon as I'm up and around, I hurt. I think I'll have to quit my job
>>>soon. I have limited pain killers that help some, sometimes. Mostly I
>>>feel like I'm in labor and alot of doctors don't believe me, I was even
>>>at Mayo for 2 weeks. This is so depressing. can someone relate?
>>
>>--
>> I tried Lyrica and it did'nt help me.
>> Although,..I may not have given it enough time to work.
>> ??? Only 5-6 days something like that.
>> I could'nt get past the bad dizziness it gave me.
>> (very lightheaded)
>> I called my Doc. and they told me to stop the med.
>> Lyrica is suppose to a nerve pain med so drs. are thinking/hoping that
>> it'll help many Endo sufferers.
>> The ONLY thing so far that has helped me is Vicoden and my gyno nor my
>> primary will write me scripts for it. saying its much to strong of a pain killer for Endo pain. (Ha!!!
>> yea,... Like they even know what the hell it feels like!
>> I'm tempted to order online but have'nt so far~
>> I'm just not so sure that online meds can be trusted.
>> Not to mention the highway robbery prices!!
>> Hope this helped some~
>> Good luck at Lyrica helping you~
>> Tracey
>>
>--
>Barbara Clowser
>

--
  You NEED to take vicoden with food.
 If I don't,...I'll get very nauseated. Like with many meds.
   and your right Barbera~  Nothing so far takes most of the endo pain away~
  Something must exist right? but for now,..my heating pad and vicos would be my choice.
  I don't even get vico's.    I had a few left over from wisdom teeth being pulled.
  Yes,.. you can get a script for vicoden when you get teeth yanked.  but not for Endo pain.
 Apparently someone out there thinks getting a tooth pulled
 is worse then having endo.    ???   ok????
    uninformed I say.
  Take care  :)
 and better days~
  Tracey

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