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Re: Lyrica for Endo PainFrom: Tracey (anonymous@obgyn.net)Mon Jul 31 13:58:29 2006
At Mon, 31 Jul 2006, lisa wrote: > >Wed, 12 Jul 2006, Sharon Ann wrote: >> >>At Tue, 11 Jul 2006, Katie wrote: >>>Dear Katie ,My Endo angel >> >>Just want youto know your not alone you have all of us here. >>Im just 42 and when i was 27 my gyn told me a hysterectomy was the cure. >>well its 14 operations and years later and still in pain and looking at >>#15 sugerie:( and the worse part is my gyn like your said the same >>thing.go some where else i cant operate on you any more because the last >>op they had to cut into my bowels. >> >>Its bad when your doctor tells you to go some where else when we look to >>then for help. >> >>Well im thankful for this forum >>And all Endoangels are always in my prayers and thoughts. >> >>Sorry about my typing I just got back from ER they gacve me shot and >>sent me home. >> >>But just wanted you to know anytime you wanna chat, vent , anything im >>here /we are here for you and all >> >>Endoangel >>Sharon Kross >> >>>Hi ladies. First off, I have to tell you this has been such an >>>informative site for me during my battle with endo. I was diagnosed >>>with Stage IV in October, 2005 (age 39). The doctor said it was so bad >>>my only hope was through a hysterectomy. After a 2nd opinion concurred, >>>I went forward with the surgery in January, 2006. The surgeon said >>>afterwards that it was the worst case she'd seen; I was full of the >>>disease. In fact, she had to leave my cervix because it was "cemented" >>>to my bowels with the endo. Well, the pain with the bm's never went >>>away - I was doubling over in pain 2 weeks post op and still am today. >>>About 6 weeks post op, the daily pelvic pain returned and has only >>>gotten worse. My ob/gyn has basically washed her hands of me and >>>referred me to a pain clinic. I got 3 other opinions before actually >>>going to the pain clinic and they all agreed there was nothing that >>>could be done. Some, including my ob/gyn, are of the mindset that w/o >>>ovaries - you can't have endo. I know this is wrong. Well, the pain >>>clinic basically said they can't do anything for me. Nerve block >>>injections apparently don't work on abdominal/pelvic pain and they don't >>>prescribe narcotics unless you have cancer. So, what he did do was >>>prescribe an anti-seizure medication called Lyrica. He believes that my >>>pain comes from my abdomen undergoing mini-seizures. Has anyone ever >>>heard of and/or taken Lyrica for endo pain. I'm sorry this was such a >>>long post! Any help/input would be greatly appreciated! Hope everyone is >>>having a pain-free day :-) Katie > >I have tried Lyrica with no luck. I have had endo for over 25 years, >I'm now 41, I've has a hysterectemy and currently am waiting for another >surgery, I've had many. I have been diagnosed with many things, but >nothing has helped. I'm in so much pain, it's hard to get out of bed. >as soon as I'm up and around, I hurt. I think I'll have to quit my job >soon. I have limited pain killers that help some, sometimes. Mostly I >feel like I'm in labor and alot of doctors don't believe me, I was even >at Mayo for 2 weeks. This is so depressing. can someone relate?
--
I tried Lyrica and it did'nt help me.
Although,..I may not have given it enough time to work.
??? Only 5-6 days something like that.
I could'nt get past the bad dizziness it gave me.
(very lightheaded)
I called my Doc. and they told me to stop the med.
Lyrica is suppose to a nerve pain med so drs. are thinking/hoping that
it'll help many Endo sufferers.
The ONLY thing so far that has helped me is Vicoden and my gyno nor my
primary will write me scripts for it. saying its much to strong of a pain killer for Endo pain. (Ha!!!
yea,... Like they even know what the hell it feels like!
I'm tempted to order online but have'nt so far~
I'm just not so sure that online meds can be trusted.
Not to mention the highway robbery prices!!
Hope this helped some~
Good luck at Lyrica helping you~
Tracey
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