ENDO Messages for July, 2006: Re: Pain increase after seasonale? Please help!!

Re: Pain increase after seasonale? Please help!! - To Anna

From: Anna (anonymous@obgyn.net)
Mon Jul 31 13:46:18 2006

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In reply to: JoCee27: "Re: Pain increase after seasonale? Please help!! - To Anna"

Its so nice to hear your responses...just getting a response feels so good...that somebody out there is understanding your problem...my family is very loving and caring but they prefer to deny that something is wrong with me...nobody really wants to hear about my problem...I feel so good knowing that there are so many great women out there to talk to! Thanks ladies! Anna. At Sat, 15 Jul 2006, JoCee27 wrote: >
>Hi Anna.
>
>First of all let me say "Welcome to the OB/Gyn.net forums!" I haven't
>seen your name here before, so I am assuming that you are new. A warm
>welcome and hugs to you from all of us here at OB/Gyn.net! Second, I'm
>sorry that you are having such a hard time with pain and progressing
>symptoms with Endo and other repro. related issues. I know what you
>are dealing with, and I know how frustrating it can be everytime you
>walk out of the doctor's office with a new drug being made to believe
>that this is the one that's going to answer all of your problems. I
>also know what it's like to be referred out to another doctor or
>specialist being given that enthusiastic feeling that this man or woman
>you will be seeing in a few days or weeks is going to help you
>tremendously and drastically improve your life and condition. Then
>comes the sad and heartbreaking revelation that either the doctor can't
>help you; or you're not the right candidate for the treatment or
>procedure; your insurance doesn't cover the treatment, procedure, or
>medication; or you're just bundle of everything wrong with absolutely
>nothing right going for you. Believe me, I've been there in all of
>those scenarios and they've all played out to a devastating or
>frustrating degree that I've just about given up on the medical field
>and don't really care what I have to do from here on out as long as it
>is a process and method that is pain-free, painless, and I can put a
>smile on my face everyday and function and perform as a mom, a wife, a
>friend, and a family member or employee.
>
>So now that I've pretty much given you the rundown of where I've been
>and where I've come from, I'll let you in on a little secret that most
>OB/Gyn's or General or Primary Care Physicians won't tell you... Birth
>control pills have been researched and studied by medical scientists for
>years in an array of different topics but none of them do anything
>remotely positive or successful for Endometriosis. These contraceptive
>pills have been studied and researched to find out if they cause or
>prevent cancer; cause hairloss; cause breast cancer; cause cervical
>cancer; cause acne or skin conditions; cause bone density loss or bone
>cancer; cause the organic compound of blood to change to reduce the
>amount of iron or calcium in a female body; and many other different
>areas. The strangest thing is that birth control pills have not been
>accurately and effectively studied to see if they reduce the chances of
>a female obtaining Endometriosis or Ovarian Cysts, and they have not
>been completely studied to see if it will slow the progression of
>Endometriosis and Endometrial Adhesions; only thought and theory by
>doctors alone have populated the frequency of doctors to prescribe birth
>control pills to treat Endo; not research and study.
>
>Birth control pills only slow down the reproductive system by creating
>an induction and reduction of certain hormones in the body and by
>regulating the ovulation and menstrual cycle in the female reproductive
>system. One study I read about online that explained the theory of why
>doctors prescribe birth control pills for women with Ovarian Cysts and
>Endometriosis is due to the reliability of regulating the ovulation and
>menstrual cycle with an induction and reduction of certain hormones
>because doctor's believe if the reproductive system is under a
>controlled environment with the right balancing of hormones that
>Endometriosis will not grow or may grow at a slower rate versus the rate
>and effect of a non-controlled environment. They also believe the
>likelihood of Ovarian Cysts would be rather slim as the rate of
>ovulation is controlled and regulated to prevent premature or immature
>ovulation which is the 99.9% factor governing all ovarian cysts that
>occur in the female body.
>
>My research as an advocate and educator of womens health has lead me to
>understand that not much is known about the true affects of birth
>control pills as a successful treatment option for Endo sufferers
>because most women with Endo may or may not have began Endometrial
>growth at a very young age of anywhere between the age of 8 to 12 years
>of age. What I have gathered from my research and reading is that birth
>control pills are one of the biggest no-no's that doctors tend to
>violate with treating Endometriosis patients because the hormones that
>birth control pills generate into the female reproductive system can
>kick Endometriosis into overdrive thus creating a sticky environment for
>Endo to grow excessively, thus creating a rather comfortable environment
>for Endo rather than a "no grow" zone. Research has proven that women
>with Endometriosis that took birth control pills as a treatment option
>found that Endo lived under dormant conditions and once the birth
>control pills were terminated, the Endo resurfaced 10 times as furious
>and painful than before. Some research has proven that Endometriosis
>lying in a dormant state under the method of birth control pills for
>treatment resurfaced as stage 2 or stage 3 reproductive cancer that was
>inoperable and uncontrollable. That is super scarey! One national study
>of Endometriosis and hormone therapy proved that women receiving hormone
>therapy injections were on a scale of 1 to 10, 8 times more likely to
>develop breast cancer and 9 times more likely to develop reproductive
>cancer than someone who smoked 3 packs of cigarettes per day was to
>develop lung cancer. That is another scarey thought!
>
>I don't ask that you believe what I've found through my research, and I
>don't suggest that you quit all therapy you're doctor discusses and
>plans for you before knowing if it's right and compatible with you and
>your issues. And I don't intend for my posted reply to your question to
>scare you in any way. What I do ask and suggest is that as an Endo
>sufferer you take the time to research and investigate Endo and hormone
>therapy and birth control pills as a treatment option and find out what
>risk factors are involved with each, as well as look at the statistics
>of each by reading up on Endo and medication research AND thoroughly
>investigate your family medical history to compare future risk factors
>for your own personal health and safety issues. You will be surprised
>at what you find available online about each of these topics.
>
>I took Seansonale and found that my symptoms were worse than they were
>before. When I went online to investigate the drug to find out if the
>reactions I was having was just me or if other women experienced the
>same things, I found a lot of very interesting articles, essays, and
>personal blogs from reliable sources that explained how birth control
>and hormone therapy concerning Endo can be like pouring fuel on a fire.
>It was a long time before my system ever fully recovered from Seasonale,
>and to this day I'm not sure if Endo or Seasonale is to blame for my
>digestive troubles because the entire time I took Seasonale I
>experienced stomach bloating and intestinal cramping and diarrhea. I am
>still having some of these problems and it's been months since I took
>Seasonale. I figure that I'll probably go through a lot more side
>affects and troublesome issues and symptoms before I ever really find
>the thing that just clicks with my problems and gives me the painFREE,
>painLESS, and worryFREE days of old that I remember having at one point
>in my life. For now I'm just taking each day one day at a time with an
>open mind and an open spirit for what tomorrow may bring through prayer
>and a desire to live as much as a happy life as I possibly can.
>
>JoCee
>EndoSisterhood Womens Health Forum
>http://health.groups.yahoo.com/group/EndoSisterhood/
>
>Law & Crime BlogSpot
>http://redraven.iblogs.com/
>
>At Fri, 14 Jul 2006, Anna wrote:
>>
>>Hi ladies,
>>My doctor suspects endo because I ahve been having severe pain on my
>>left side on and off for more than a year..I earlier thought it was
>>related to my colon in some way..but all the tests are normal so far
>>(touchwood!)..I have been on seasonale for about 1.5 months...I did not
>>have any major side effects except nausea in the morning - but my pain
>>which was cyclic/periodic before has really shot up and I am now in pain
>>everyday...my legs and hips pain too...which was not happening before..I
>>am wondering if the seasonale caused this? I must mention that I ahve
>>been under a lot of emoitional stress a month ago and am also taking
>>anti-depressants (I started these 2 weeks after the seasonale) I asked
>>my Doctor and she said seasonale cannot cause endo to become worse -
>>maybe it became worse due to stress and is now out of control and is
>>suggesting surgery...I want to avoid surgery right now becuase I am
>>dealing with some tough times as it is ...becasue really before the
>>sesonale _ my pain was very very bearable..Hasanybody had such an
>>experience with Seasonale? I don't have any spotting etc..I read that
>>endo feeds of estrogen and OCPs actually contain estrogen - so is that a
>>possibility? Not sure....will really appreciate any response...please
>>help!!
>>Thanks,
>>Vibha.
>
>--
>ENDOANGEL JOCEE
>
>Law & Crime
>http://redraven.iblogs.com/
>
>Endo Sisterhood Support Group
>http://health.groups.yahoo.com/group/EndoSisterhood/
>

Next message: Tracey: "Re: Lyrica for Endo Pain"
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In reply to: JoCee27: "Re: Pain increase after seasonale? Please help!! - To Anna"

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