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Re: Lyrica for Endo PainFrom: lisa (anonymous@obgyn.net)Mon Jul 31 12:11:13 2006
Wed, 12 Jul 2006, Sharon Ann wrote: > >At Tue, 11 Jul 2006, Katie wrote: >>Dear Katie ,My Endo angel > >Just want youto know your not alone you have all of us here. >Im just 42 and when i was 27 my gyn told me a hysterectomy was the cure. >well its 14 operations and years later and still in pain and looking at >#15 sugerie:( and the worse part is my gyn like your said the same >thing.go some where else i cant operate on you any more because the last >op they had to cut into my bowels. > >Its bad when your doctor tells you to go some where else when we look to >then for help. > >Well im thankful for this forum >And all Endoangels are always in my prayers and thoughts. > >Sorry about my typing I just got back from ER they gacve me shot and >sent me home. > >But just wanted you to know anytime you wanna chat, vent , anything im >here /we are here for you and all > >Endoangel >Sharon Kross > >>Hi ladies. First off, I have to tell you this has been such an >>informative site for me during my battle with endo. I was diagnosed >>with Stage IV in October, 2005 (age 39). The doctor said it was so bad >>my only hope was through a hysterectomy. After a 2nd opinion concurred, >>I went forward with the surgery in January, 2006. The surgeon said >>afterwards that it was the worst case she'd seen; I was full of the >>disease. In fact, she had to leave my cervix because it was "cemented" >>to my bowels with the endo. Well, the pain with the bm's never went >>away - I was doubling over in pain 2 weeks post op and still am today. >>About 6 weeks post op, the daily pelvic pain returned and has only >>gotten worse. My ob/gyn has basically washed her hands of me and >>referred me to a pain clinic. I got 3 other opinions before actually >>going to the pain clinic and they all agreed there was nothing that >>could be done. Some, including my ob/gyn, are of the mindset that w/o >>ovaries - you can't have endo. I know this is wrong. Well, the pain >>clinic basically said they can't do anything for me. Nerve block >>injections apparently don't work on abdominal/pelvic pain and they don't >>prescribe narcotics unless you have cancer. So, what he did do was >>prescribe an anti-seizure medication called Lyrica. He believes that my >>pain comes from my abdomen undergoing mini-seizures. Has anyone ever >>heard of and/or taken Lyrica for endo pain. I'm sorry this was such a >>long post! Any help/input would be greatly appreciated! Hope everyone is >>having a pain-free day :-) Katie I have tried Lyrica with no luck. I have had endo for over 25 years, I'm now 41, I've has a hysterectemy and currently am waiting for another surgery, I've had many. I have been diagnosed with many things, but nothing has helped. I'm in so much pain, it's hard to get out of bed. as soon as I'm up and around, I hurt. I think I'll have to quit my job soon. I have limited pain killers that help some, sometimes. Mostly I feel like I'm in labor and alot of doctors don't believe me, I was even at Mayo for 2 weeks. This is so depressing. can someone relate?
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