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Re: Stage IV Endo..hysterectomy decision..Extreme sadnessFrom: Karen (anonymous@obgyn.net)Mon Jul 31 02:26:34 2006
At Sun, 30 Jul 2006, anonymous@obgyn.net wrote: > >Hi Kath: > >First let me say welcome. Big Hugs from afar! I am so sorry to hear >that you are at the final and most crucial point in your battle with >endo. I am a stage IV as well and can relate on a lot of levels of what >you are and have to go through. It looks like your body has been >through so much as well as your heart. I had to resign piece by piece >to get to the point of a hysterectomy. I lost a baby while trying in >the early stages of pregnancy. Even with a loving husband he still has >a hard time understanding the why and how are you women having to >continue to suffer like this. After my hysterectomy in 2002 I felt tons >better for 8 years..now I am 42 and it's back not as bad but just as >debilitating if that makes sense. The "H" is not the cure, seems >nothing is but you have less organs to battle with. Not to minimize you >and your life long friend - your body. Some like me have constant >problems with colon, bowel, retropertioneal fibrosis and urological >blockages still with this disease after and "H". But that is me..Others >have less or more problems still after an "H" >The key is to keep managing it before and after your "h". Like I said I >didn't have a reoccurance again for 8 wonderful years and now I back >managing it again the best I can with our in or outpatiet surgeries to >remove the scar tissue and adhesions over time. Hopefully after your's >you will see a greater effect and can come down and clean out your body >from all the medicines and procedures you have been through. It takes >time..and an answer will come about children for you..if you keep >searching when you are ready. > >We ended up adopting. We started the process 5 months after my "H" >because I was so sad I thought my heart was going to break in a thousand >pieces. It seemed like forever before we got our daughter at 11 months >old in 2003. I won't lie I didn't feel my heart fill up again until I >had her in my arms. I was so beaten down with this disease like >you..it's hell. The good side is single people are adopting now all >over the world. There are programs that if you can't travel there to >get your daughter for an extra fee they can chaparone (hope I spelled >this right) her to the airport. I have an autoimmune deficiency now >because of this disease so I didn't even get to go get her. My husband >and father-in-law went (as he conducts business there all the time) and >was a big help. > >I look at my life now as the reason God did not want me to have my own >children was maybe something worse would happen to me. I give lots of >credit to single women who are battling this disease and raising a >child- they deserve it too. It's just a little harder on those days >when it takes you down. > >One last thought..after you do your "h" can you do something to cease >your cycles before and after your "H"? Have no period prior to surgery >so the endo can be dormant and when they operate it will be better for >them to get as much as possible without the spreading of disturbing >more? Sorry, so long, I just wanted to share with you some future >options. It's going to be OK..you and your body deserve a break and >there is hope. If you ever want to write me personally about adoption, >I would be happy to help anyway I can. > >God Bless you and I am here for you! > >Elisa >At Sun, 30 Jul 2006, Kath wrote: >> >>Hi. I'm new to the board but I'm hoping to find some support here. I've >>been dx with Stage IV Endo years ago. I'm single and have never had >>children. I actually tried to conceive for almost 2 years, beginning a >>little over 2 years ago. I'm at the end of my journey as my RE has told >>me that I really need to have a Hysterectomy. My Ob/gyn told me that I >>needed one 7 years ago after she did my first Lap. I've been through >>more laps, Lupron, fertility treatments, birth control pills, etc....Now >>I'm taking Vicodin every month and still suffer from a lot of pain. >>Anyway..the reason I'm writing tonight is because I've been so sad. I'm >>Never like this. I have to give my RE the decision to do the H on >>Tuesday. I'm going to ask that we wait until the end of Winter so I'm >>not depressed from Winter along with the H. Has anyone else experienced >>this horrible sadness? I just can't stop crying. (This is the opposite >>of how I usually feel) If so, what did you do to make it go away? I Hate >>being like this!!!!!
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