ENDO Messages for July, 2006: Re: Stage IV Endo..hysterectomy decision..Extreme sadness

Re: Stage IV Endo..hysterectomy decision..Extreme sadness

From: holly (anonymous@obgyn.net)
Sun Jul 30 21:05:09 2006

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(((((hugs))))) i have only mild endo, but i've never been able to get pregnant. we tried almost 10 years before finally realizing it's not goign to happen. but it's not the end of the world. there is more to life. however, it is hard living in a world that is so focused on families. i wonder if ivf would work for you? have you looked into it? i imagine you have since you're working with an RE. it doesn't hurt to get a second opinion. we've seen about 4 or 5 REs in our journey, and each had a different thing to say. that's why we didn't give up for so long. i have a friend who had stage 4 endo, severe adhesions, and her dh had zero sperm. they did a surgical procedure on her dh to get sperm, and they did IVF/ICSI. they were able to conceive on their 3rd IVF attempt. they have a little boy now. they did end up using a different RE for the 3rd attempt, and i think that made the difference.

so before you decide on a hysterectomy, seek another opinion from another RE. you might be able to find someone who can give you hope for a family. our last RE finally figured out my uterus is the issue and not endo this time. and knowing that makes it a little easier to move on.

only you know what is right for you. but before a hysterectomy, definitely get another opinion. if you need to see 4 or 5 REs like we did, then do it. do whatever it takes for you to feel at peace. if you aren't at peace, then a hysterectomy will not be the answer. you need to feel a hundred percent ready for it. and from the sound of your post, you aren't ready. not yet.

hang in there. talk to more drs. you'll find the answer soon. and i hope and pray you have a babe in your arms soon.

(((((hugs))))) ~holly mild endo

At Sun, 30 Jul 2006, Kath wrote: >
>Hi. I'm new to the board but I'm hoping to find some support here. I've
>been dx with Stage IV Endo years ago. I'm single and have never had
>children. I actually tried to conceive for almost 2 years, beginning a
>little over 2 years ago. I'm at the end of my journey as my RE has told
>me that I really need to have a Hysterectomy. My Ob/gyn told me that I
>needed one 7 years ago after she did my first Lap. I've been through
>more laps, Lupron, fertility treatments, birth control pills, etc....Now
>I'm taking Vicodin every month and still suffer from a lot of pain.
>Anyway..the reason I'm writing tonight is because I've been so sad. I'm
>Never like this. I have to give my RE the decision to do the H on
>Tuesday. I'm going to ask that we wait until the end of Winter so I'm
>not depressed from Winter along with the H. Has anyone else experienced
>this horrible sadness? I just can't stop crying. (This is the opposite
>of how I usually feel) If so, what did you do to make it go away? I Hate
>being like this!!!!!

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